Still feel rubbish :(
Posted , 4 users are following.
Hi all, I got told I have over active thyroid, beginning of July, was put on 40mg carbimolae and 80mg propranolol, spoke to the doctor yesterday and he said thyroid has corrected as it is now 15! Which is great, he also told me I have Graves' disease, could this be the reason why I still feel like rubbish, I am constatly tired, sweating and just no energy, in the beginning I was starting to feel myself again but these past two weeks have been a nightmare, I havecried constantly for a couple of days and I am at my wits end, no reason just real tears like someone has past away, I don't know what I want from this forum, maybe just some reassurance, I have the hospital at the end of August, thanks for reading.
2 likes, 19 replies
CA-Lynn dawnemma
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linda187 dawnemma
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This is why I urge all patients to ask for a copy of their actual lab report on blood tests done every time they are done and to read all about and learn all about their their particular disease and symptoms. If a doc told me my thyroid has corrected as it is now 15, I would say "what are the other values?" Because my T4 and T3 corrected immediately when I was put on 10 mg of methimazole but my TSH did not rise at all and it was at less than 0.01 when it should be a minimum of 0.40 at least by my doc's lab standards. So my symptoms were managed but my disease was not. I still had thyroid antibodies and one of three of my thyroid lab tests was still not normal. Doctors are not Gods. They are educated mortals. They have to get educated on a lot more medical stuff than you do but you can get educated on your particular problem. People who have had hyperthyroidism values that require 40 mg of Carb and 80 mg of Propranolol have lost a lot of carnitine from their muscles and this needs to be replaced. You can Google the article by Dr. Salvatore Benvenga who documented this in a research study he did. You can ask for a Free and Total Carnitine blood test to document this and if it shows you are canitine deficient as I am sure it will and as it did in my case, you can start taking Carnitine supplements you get from the health food store which will address the problem of muscle weakness. Secondly, you probably no longer need the Propranol at least not at that dose. This is probably making you feel depressed. It is very necessary to control symptoms until all tests are done for a diagnosis but once you start on Carbimazole, it is usually not needed or at the very least not needed at that dosage. Tell your doc at your next visit how you feel and ask him if you can reduce or eliniate the Propranolol. Please keep us posted on how you are doing after your next doc's visit.
dawnemma linda187
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linda187 dawnemma
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dawnemma linda187
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dawnemma
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linda187 dawnemma
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emmaj43 dawnemma
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I also just want to mention my consultant can not understand why I am still feeling just dreadful with my levels being controlled by 40mg Carbimazole & 100mg levothyroxine. My tsh is 0.09, t4 23.4 t3 6.4 . He has started looking into iodine uptake and this can be a reason for not feeling great. Has anyone else had an iodine uptake test?
dawnemma emmaj43
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linda187 dawnemma
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emmaj43 linda187
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audrey97605 emmaj43
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How long have you been on medication?
Audrey
linda187 emmaj43
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linda187 emmaj43
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emmaj43 audrey97605
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