Still having Shoulder pain need help.

Posted , 7 users are following.

Over the last 20 years I have had multiple shoulder operations muscle reattachment, Type II SLAP Tear repair, Acromioplasty Cuff Repair, have also been diagnosed with osteoarthritis. Yep I have a dicky shoulder. Since my last operation 9 mths ago the pain is off the reservation, I have been guinea pigged big time and Í'm over it. I have been given endless types of anti-inflammatorys like meloxicam, etc All make you feel constantly ill with 0 benifit. I have been on epilepsy drugs like Lyrica as this works as a pain blocker for 2 in 10 people.(should be banned for its nasty side effects) with 0 benifit. then we start with the real nasty stuff, P.Forte, Tramal, Morpheine Sulfate once again side effects like being smacked out of your head. Im self employed with fiance who has a brain disorder that needs care and two kids (voltures Nah their pretty good actually) I cant afford to be this way I have responsibilities. Then my Dr prescribed what I call a wonder drug Oxycontin 40mg. Bingo pain reduced by half straight away, woohoo back to work after 2 mths on this I went to pain management therapy at JHH newcastle Aus where to my complete disbelief my fiance and were told that and I quote " all pain excluding that of cancer can be cured by exercising, eating healthy like salads and drinking fresh water " I have played sport for over 30yrs and do eat healthy and guess what it dont help, maybe it does in fairyland but not in real. I have been taken off all meds end result, I had to shut down my business, I lost my house and because of this we had to split our lovely family apart to be accomodated.. My specialist believes its nerve damage and nothing can be done. There has to be an answer out there surely, I despise medications and the label of people that take them carries, but at least I could work and support my family the way I should. Instead now I'm in pain 24/7, dont sleep for up to four days at a time. Has anyone else had problems with their shoulder like this, has anyone tried accupunture, seriously has someone any idea on what to do because i'm at a complete loss on what to do.

1 like, 9 replies

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9 Replies

  • Posted

    Have you tried another specialist?
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  • Posted

    Hi Dan,

    So sorry to hear your story. I'm curious on your medication Oxycotin. I'm on that medication but suffer horrendous withdrawal symptoms if I don't take it on time. Coming off scares me because of this. Advice would be gratefully received.

    Also, I was told by a physio that my shoulder pain was because 'I was stressed'. I needed to relax more!! The little fact that there was no cartilage and my pain was bone on bone movement obviously didn't count!!

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    • Posted

      Hi Stephanie

      That's my experience of physios too - most are very happy to say things like that with no medical evidence or indication. I find it best to ignore them when it comes to such matters.

      Dan, do you have an idea which operation or bit of your anatomy is cauing the pain? If so, I would at least try and find someone who has specific expertise in this area. The good news is new shoulder treatments are appearing every year. For example, large or chronic rotator cuff repairs are beginning to get easier to repair with the development of things like the GraftJacket human dermus patch.

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    • Posted

      The trouble with 'ignoring' the opinion of the Physio's it goes against you and they write 'negative' 'non co operative' in your medical records. I've had access to mine. I nearly had to be treated for concussion for hitting my head on the ceiling!!!! Furious was an under statement.
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    • Posted

      Hi Stephanie...read my response to Dan...My brother has also had this written on his record...he would not let the physio touch his shoulder as he just screamed in pain. They tried strapping it and took a huge piece of skin when they removed it! When he has tried to limit the number of pain meds he was taking it was written as...'refused medication'! The fact that he has a disability and needs response time was not taken into account or that he is deaf on one side and sometimes did not hear what they had asked.
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  • Posted

    Dan thankyou for writing your story...I have a 60 year old brother with cerebral palsy and an intellectual disability...he has been having shoulder / neck pain for almost 9 months now. He has spent 3 weeks in hospital and 3 in rehab this year the sent home with no answers. Other than what is showing up on the scans, xrays is not indicative of the pain he has..in other words...it is in your head! Low pain threshold etc!!!! He too has been on strong pain killers...Lyrica..stopped because of side effects, Oxycontin, endone, targine, osteo panadol..has been on endep for 2 weeks and have added tramel in the last few days! He says that the pain never completely goes away..it is sometimes bearable if he does not use his arm...trouble is it is the 'good' arm as he has CP on the left side. Dressing, tying shoes, any movement of his arm causes pain. While in hospital it was being treated as a shoulder problem as there is a small tear...in desperation I took him to the orthopedic specialist as I had done earlier...he believes now that it is his neck not his shoulder..he has pain down the side of his face into his neck, shoulder, arm, hand and fingers. Sometimes in his right leg as well...he describes it as being 'dead' or very heavy. We have tried acupuncture with no success. He screams in pain with physio and eventually would not let them touch it. The same with a chiro. He says that the pain is worse at night and also has trouble sleeping. I really do not know what to do next. I took him to another GP over the weekend to see if he could get even some temporary pain relief and I was hoping for a 2nd opinion too...of course without access to all his test results he could not really help...di suggest looking into the possibility of it being a dsiruption to circulation...nerve damage. We have been to a neurologist but really at the end of the day he was not treated well...public patient! Come back in 12 months! No neck specialist in the town we live in. He has not been to his supported employment all of this year and I cannot see light at the end of the tunnel..I do n ot think that he will be able to return to work at all if this is  ot resolved. I will continue to follow here and see if anyone has any suggestions. Hope that it can all improve for you too. Hang in there.

     

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  • Posted

    http://orthoinfo.aaos.org/topic.cfm?topic=A00678

    have your nerves (specifically your long thoracic nerve) and brachial plexus checked. I provided a link to info for the brachial plexus above.

    The long thoracic nerve is extremely thin and fragile. When your surgeon went it to operate he could have injured it. I was told it can get injured by how they position your head during surgery as well as in the recovery room. 

    Do do you have any other symptoms such as scapular winging?  Migraines?

    have you tried dry needling and trigger point injections? 

    I have horrific pain in my right shoulder for the past 4 years and have had 3 shoulder surgeries, none successful.

    I feel your pain truly. I can only write and type for 10-15 min at a time before I break into spasms. I have been on all of the meds you mentioned, except the hardcore ones. I am on Tramadol as needed. 

    It it really makes it hard to be productive in anyway.  make sure you don't fall into post surgical depression. 

    I have been to many top doctors in Chicago, no one knows what's wrong.  I am finally being told to see a neurologist. 

    I I hope this helps you a little. If not at least we got to share our horrid shoulder experiences. 

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  • Posted

    Hi Dan, I sympthathise with you. I too am tired of being told numerous things like change your diet, become more active to it's all in your head, you are a melingerer.

    I fell up some stairs at work over 6 years ago and as a consequence had bilateral subacromial bursitis which resulted in me having to have 1 operation on my left shoulder and 3 on my right.  The op on the left shoulder worked a treat up until recently.  As for my right shoulder I have been trying to get back to working 7.5hrs a day since the injury and subsequent operations but have had numerous flare ups which had me reducing my work hours for a considerable period of time.

    My work place is not very supportive and see me as a melingerer (I would love for them to have to deal with the pain and not being able to do what I want).  I rarely have a day that I am not in some sort of pain and like you hate taking pain killers, I try to control the pain using heat packs - some days it works better than others. My specialist told me from the very beginning that the operations may or may not work - if they didn't I would just have to learn to live with the pain and not being able to do all that I used to.  Which to me seems a cop out. 

    Unfortunately, we fall into the too hard basket and because the cause of our pain is not visable there is very little assistance or understanding out there.  Everyone's body is different in relation to the way their tendons and muscles work unfortunately the medical fraternity seem to forget that one important thing when diagnosing and setting up so called rehabilitation programs. 

    I am thinking about finding somewhere that does "Trigger Therapy" to see if that will help. 

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  • Posted

    Trigger therapy? Are you referring to the treatment of trigger points? If so, any good chiroprachter or osteopath should be able to help.

    Best wishes, NICK

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