Straight up

Posted , 2 users are following.

I've been on a big learning curve with this problem, and it's been an emotional rollercoaster. My partner and I try and bring humor to it as much as possible, since it has slowed our sex life down a fair bit. We have talked about how we recognise signs early, because sometimes they weren't obvious, no outbreaks and yet sex could be painful. The lastest one for me is my pubic hair goes from curly to straight, unbelievable. This is the first symptom that has made us both laugh, but it helps to know that this is another no sex sign. Thank goodness for cuddles.

0 likes, 19 replies

19 Replies

  • Posted

    It must be a blessing having some one to share this with. I'm not saying you have a easier time dealing with this but it must help having some one to talk to Comfort you.
    • Posted

      Yes it does Jason and I so wish this was the case for everyone, but it does come with it's issues, sometimes the headaches and feeling tired can make us grumpy and stops us going out, which we both loved to do, forgot how many nights out we have cancelled because one of us or both just haven't felt up to it. I stopped going to Art college, stopped my meditation classes, made me feel crap. Hope you get a good outcome.
    • Posted

      You just said something that really got my attention. Since having this and being off medication recently, I've done a obstacle run and went to a park for a few hrs w standing in lines and walking for hrs. Both of these events I had a type of fatigue I've never felt in my life. I didn't have an ob during the run, but I did inside during the park. I was so exhuasted like I have never felt from these, I slept until the late afternoons the following day and still felt tired for days to come. I started to suspect it was herpes yesterday, but you only read about that fatigue happening during the first ob. I don't get headaches though. Are you guys on meds?
    • Posted

      I did take aciiclovar tablets when I first got diagnosed but they made me feel sick and even more tired, went back to GP who said they were common side effects. My partner took them but a milder dose ( I took 500mg) can't remember his, but he finished his dose and didn't feel they made much difference. We both have definitely noticed fatigue problems with outbreaks, I tend to get pains in my buttocks, abit down leg, just before the headaches start. I'll be honest though, I am better with symptoms if I go to bed early, don't drink alcohol and don't drink coffee, all of which I don't do at times. Someone posted that pineapple helps and we both tried that and did notice we felt better for it. I tend to get more outbreaks than my partner as I stress about things more and H loves stress, this has been the hardest thing to deal with.
    • Posted

      I have symptoms every single day. I've not felt normal since I've had this down there. I have gotten better over time and hope that when I reach a yr and past in several more months, it will get even better. Valtrex made me have bad headaches when I first start taking it..

      So where does your pubs hair then straight? Is it all of it or some? That is crazy.

      Yes, I get pain in my buttock and back of legs too. I had a lot of pain in my hip joints while standing this weekend and I know I was breaking out inside. I knew when I woke that morning it would be like that, as I had burning in my tailbone. I have not cut out coffee or alcohol . I have contemplated doing this w coffee and say tomorrow will be the day and then I never do it. So I've no idea if it'll make a difference.

      Arw you fatigue only during IVs or all the time since getting it?

  • Posted

    So both of you have it? That's the strangest symptom I've ever heard, no offense. I've never read that anywhere. Wow...

    So does sex hurt all the time? How long have you had it?

    • Posted

      Sex does hurt sometimes, we let each other know exactly how we feel and stop if it hurts. The main thing is lubrication that is really important, I just get to have more foreplay so not grumbling at that. But it has slowed our sex life down lots, which saddens us both. We're both in our forties and luckily are committed to each other. The main thing that has kept us together is being honest about how we feel and talking about it, not carry resentment, like who gave it to whom, as we honestly don't know.
  • Posted

    Yep, both of us. We met 3 years ago. Had a great sex life for 6/8 months. My partner had a pimple on his lip, didn't look like herpes, I started getting bad thrush then sores, was misdiagnosed for about a month until I couldn't wee without screaming in pain. Both eventually got results of having genital herpes, and not sure who gave what where, when, just done our best to cope with it together. We are lucky that we love each other enough to muddle through it, but trust me there have been tears, pain, headaches, oh the bloody headaches, but we've had to manage the best we can by only having sex, making love when we both feel ok, which isn't very often to be honest bit we decided that there is other things in a relationship that are important. Might sound corny but we cuddle a lot more, which helps, we try and joke about it, not easy at times. It's either that or we let this nasty little virus get the better of us and that's not an option. I'm still learning and trying to change my life style which isn't easy. I'm sure I would look at it totally different on my own.., so I'm grateful That I have a good partner and friend.
    • Posted

      Is it hsv 1 or 2 you guys have?

      I fear that sex will be painful for me, because I have symptoms almost every day. When I'm on my cycle, I have a sore or two inside.

      How often do you guys have symptoms or ob? Sobsex can hurt for him too?

      I'm glad you two have each other in this situation. I can honestly say that dating has created a lot of anxiety for me and I've decided to hold off on dating for other reasons, but it definitely didn't make it easier thinking about a possible conversation about it.

    • Posted

      Thanks for kind comment, I would be looking at this totally different if I were single. We've talked about this and how it would be difficult meeting someone, but one thing for sure it would sort out the real folk who are caring and aren't just into you for sex. There are good people out there but it doesn't make it easy for us. We have quite a few outbreaks and symptoms, roughly we have one good week in a month, but to be fair I'm sure we could make it easier if we led a healthier life and we don't, so we pay the price. In a way it has been a wake up call for us both to be healthier and have a better lifestyle. Neither of us get too many sores, so we are lucky there. I get a lot of itching through the night and need to throw the covers off my buttocks as it feels red hot. I wash my bits before I go to bed, just with a coldish flannel, that helps. Always, always wash after sex as this definitely makes a difference. Sometimes having sex actually helps because I can get very dry with herpes and getting wet can help, as long as I wash straight after. I really wish for you that when you are ready you find an understanding partner who can accept you for you and not a virus. I've read some of your posts and they have really helped, you're very resourceful. We need more people like you. My partner reckons there should be a singles H dating site. Wish there was more info about H, does frustrate me.
    • Posted

      We both have HSV 2, my partner has 1 as well.
    • Posted

      Where do you get the majority of your obs now? What's interesting for me is, I always got a bump or two on my external genitals once or twice a month on daily meds. I stop taking them after taking a daily live culture probiotic w high doses of vitamin C, D and Bs and zinc and a couple weeks off, I get swollen tender lympth nodes in my groin (which I only ever had on my first ob), then itching on cheeks and had a few bred bumps and that is it. I still have not had, knock on wood and external genital sore since being off meds and I have half or even more than half less strange nerve sensations than I did previously on meds and w out the probiotic.

      I too need to make the change w my eating. We can encourage others! I'm terrible! I hate cooking!

      Thank you! That was very sweet of you to say! My heart breaks for how people feel when they get the news and how alone you feel. I feel one of the biggest culprits to herpes being an epidemic, is the lack of good education in it to start and the continuation of old and incorrect information that has no substantial evidence to back it. Drives me nuts and we have some people on this site who will do that and I hate that some young naieve person might listen to them. You would be shocked at the amount of research and case studies I review. I'm talking PDFs. Hoping to really find ways w in the immune system through nutrients that well help w suppression. I'm currently looking into idodine and yet to test it out. It is needed by the thyroid to produce CDR 3 & 4 T cells, which are the main defense against the replication of the virus and entrance into healthy cell nucleus, which for some people (they do not know why) results in their nucleus exploding upon entry, resulting in a sore. I think poor diet leads to a lot of deficiencies. There is another nutrient as well, but I cannot remember how to spell it

      I feel like I will most certainly pass this along and the low transmission rates do not apply to me, because I always have strange nerve sensations. These do disappear more the longer I'm on probiotics and I get them more if I miss my probiotic. 70% of your immune system is in your gut. Having a healthy balanced pH in your gut and your body being alkalined (two tbs of apple cider vinegar daily) helps getting your body there.

    • Posted

      Oh there are sites like that and people don't like to show their pics, so it's hard to find anyone. Attraction comes first and nobody wants to read a faceless profile. :-)
    • Posted

      Wow, just read this on getting up. Alot of info to take in. Will re read, thankyou. I was like, oh you get that too, with swollen lymph nodes in my groin, so bizarre, another way I know I have an outbreak, my lips of my groin also open with the swelling and again my pubic hair standing straight. Weird but a good way of letting me know what's going on.

      When I was first diagnosed 2years ago, I was in a mess, I too cry when I see peoples posts when they go through the first stage. To me it felt like greiving. I was in denial to begin with, then wanted to blame someone, shock, depression, and now acceptance, but still angry with medics, as I've been fobbed off a bit. There just doesn't seem to be much help here in the UK.

      I can get an Iodine wash for my bits at the STD clinic, this helps as I won't use anything soapy. Did use tea tree to begin with, but as I hardly get a sore, it doesn't seem to matter much. I drink warm water with lemon, all day, this seems to help. Tried Lysine, not sure if that helped or Echinacea, although my pal with bad outbreaks, swears by it for his ammune system. I think we have to find what helps us individually to a degree. I may sound mad here, but I think some things in my life have had a placebo effect on me, so my theory is if it works for me, then carry on. I must take more bit vitamin C, good advice that. I used to take 1000 mg effervescent because apparently if you smoke, and I do, our body won't absorb tablets properly. I studied holistic therapy for 2 years, got a diploma, did a bit of work around nutrition but sad to say I don't put into practice. Still practice reflexology, which my partner loves and he's learning to practice on my feet 👣. This is so nice when feeling sh*tty from H, and I can't prove it, but I'm sure it helps the healing process. Phew, haven't I gone on. Time for my one cup of coffee for the day. 🍵😊

    • Posted

      Yes, it absolutely is devastating when first getting the news. I think alls you think about is having it for the rest of your life and the rejection you'll experience and the fear of putting someone else through the same type of physical pain and psychological pain.

      I have at my groin right now on the tight side in an inch worth of skin, just really sensitive skin. Same w at the top of my crack. I always feel stuff going on at the top of my crack. I used to get that feeling of an insect crawling on me all the time on my gwjirals, buttock and back of thighs, but this week, I've literally had it only once or twice. Very strange, but good news. Hope that is indicative of this virus not shoeing itself more and more.

      I felt like lysine didn't work, but my vitamin list is actually from case studies and also from my own research, paying attention to what is healthiest for nerves and what they need to be repaired.

      I know you already know this and it ia hard, but you realty shouldn't quit smoking. I was still smoking when I got this. Not long after getting it, I got put on chantix to quit smoking. Yes, it has halcious aide effects, for me anyway, but it really does work. I only take it for like two weeks to three weeks, because I have such bad side effects from it, but I can quit in that period of time. I can usually quit the first week on it, but take it longer till my body goes through withdraws.

      Hope you had a great day!

    • Posted

      Hi, hope you've had a good day, and Happy Easter. I haven't bought any chocolate as yet. I'm trying to stay clear of it because it really doesn't help. Yes you're right about giving up smoking, something I am trying to give up, for many reasons, not just H. I noticed you said you get symptoms nearly all the time. I can count the days I'm free of all symptoms. If I sit down and think about it, I get very down and frustrated. I get pains in my buttocks and legs quite regularly. I suffer with sciatic too, sometimes I don't know which it is.

      I hadn't thought about anonymity re datelines and herpes. That's a tough one. I wish some people would understand how much this virus effects our lives. The one thing that hurts me more than anything is not being able to commit to a course, job, meeting with friends, sometimes the headaches and tiredness take over me and one thing I have learned is that I need to sleep when my body tells me it's tired, otherwise I get worse outbreaks, itching swelling, headaches etc. I feel dirty at times,. My friend says I would benefit from embracing H as a friend rather than an enemy, as it may improve my outbreaks and symptoms. I haven't managed to do that yet, maybe one day, but I do feel it has robbed me of certain pleasures especially in my relationship. 😔

    • Posted

      Well I will say baths help clear things up faster for me. I cannot believe I made it an entire day w out a crawly sensation anywhere! I've been super bad the last few months and been eating chocolate donuts in the morning and I didn't today, so now I'm wondering if the chocolate really has been contributing. Being someone who suffers from depression myself, if you don't get up and exercise, you will stay depressed. Every period in my life I've been depressed, no amount of counseling or medications got me out of it. It was consistent exercise. If you start off slow w a small commitment, you will start to crave doing it. I started off w saying OK.. I don't feel like working out today, so I'll do 15mins and see how I feel. By that time, some endorphins have kicked in and you're like, why not just finish the other 15mins of cardio.

      I will admit, it is hard sometimes not to feel as if your bits are tainted. It doesn't make me feel tainted as a whole, just that they are at times and I question how a guy who doesn't have it could love it and want to give oral sex. The internet I think can scare people.

      I think we both just should hold each other accountable that we did some sort of exercise every other day. I know it's hard to get out of a rut, but it's so much easier when you have a partner to do it w! So you guys should start by walking tomorrow! I know you guys can do it and before you know jt, you guys will start feeling better and having less symptoms!

    • Posted

      I like your attitude, and yes, you're right about exercising, I know this help. Had a dog and last October I had my wonderful 15year old staffy put down, because of dementia. He wad my rock regarding exercise and general well being. I'm still grieving for him, but I know I need to start swimming again as I do enjoy it. My partner is fine on that score, he's very fit, surfs and cycles a lot. It's me who needs the motivation. I wish I had a bath, shower only where I live, but hoping to transfer into a new flat. I have a crazy neighbour, whom caused me great stress last year. Luckily my GP and other professional folk are helping me to move. Long story, and I could have had her removed but I wanted a place with a bath and my own garden, so I'm patiently waiting for something to turn up. My partner and I live separately, this may change but for financial reasons this is the best solution at the moment. I've just given into a choc biscuit and coffee, but I may get my butt off the sofa and go for a beach walk, you've inspired me. Wishing you a lovely day. X
    • Posted

      I totally get what you're saying, I was devastated when I lost my boxer years ago and swore I'd never get another dog.. Then I ended up adopting a dog five months later and another dog a year later, both small and they're just my little babies! Maybe you should adopt another dog?

      Do you live in Australia? You keep mentioning the beach is why I ask. I hope you do find a place w a bath soon! I really hope ypu got that walk in!! You'll feel a million times better and the walk on the beach will inspire you further! Good for you! Glad you got a boost!

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