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I am 39 and had my first operation when I was 16 for this I have never gone more than 18 months without surgery at some points I have had such a deep excision that I have had over 3 months off work. Due to relocation I have seen many different surgeons and I was fed up with them not looking into why this kept happening and why all they could over me ws excision or closure which to me was only reactive and no one would spend time to look at a more holistic approach . I even had one surgeon who said to me I don't understand why this upsets you so much and how it has an impact on your life!
However after spending over a week on google I found a remarkable surgeon who had a specialist interest in this condition and I payed to go and see him last year. He was amazing he really understood why I was so upset by this and took a different approach. Touch wood I have not had any symptoms which has never happened before I will never be able to thank him enough for how he has given me my life back. He refused to treat me privately and insisted he did it on the nhs. Although he never said anything this to me was his way of saying that I had suffered enough for 22 years! I saw him on a Friday and the following Wednesday he performed the surgery.
My advice to anyone is do not accept that there are not specialists in this area as I did for so long and although you will have to do the ground work yourself it is worth researching the surgeons in your area to find someone who really understands this condition
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