Surgery February 6th

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Hello All,

I have Chiari with a blocked CSF I have surgery soon. I'm a little worried my NS says that I will have a one night stay and I will be off for 6 weeks. Does this sound reasonable for my operation or am I going to need more time. I'm also worried about him not opening the dura. I just don't want to keep having to come back and have more surgery because they didn't do it right the first time. Also they are not Chiari specialist. Please any advice or comments are helpful. Also a heads up as to how I'm going to feel after surgery would be great. You guys are awesome thanks!

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  • Posted

    Hi Julia,

    I had surgery and I was in the hospital about 5 days. I never returned to work as I had some other issues.

    If you don't feel confident about your doctor I would get a second opinion. I would request a breakdown of what the surgery included and why.

    Chiari decompression surgery is a very serious surgery. The surgeon should explain the positive and negative effects.

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    • Posted

      Exactly what I thought he was just to quick to say you need surgery because of CSF blockage and that's it sign here. I thought I would have a 2nd appointment to talk about the procedure but it doesn't seem like I am going to have that. So I will be calling to get some clarification as to why I am having this procedure done in place of the opening of the dura. I also thought that him saying you should be able to go home the next day was just a jump to conclusions on his part. Thanks for your reply. 😊

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  • Posted

    Hi Julia

    Sorry can't help as I m due to see my NS regarding the same surgery in 3 weeks but please keep us all posted as to how to you are getting on

    Good luck and speedy recovery

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  • Posted

    Hi there- my neurosurgeon was not a specialist either.  I was decompressed on November 4th and was told the same that it would be one night stay but I was told I could be back to work as soon as 2 weeks up to 6 weeks.  I ended up staying longer but that was probably due to my reaction to the anesthesia - surgery went over 5 hours as they had to remove the C1 I believe it was.  I have to tell you that everyone is different (sounds familiar right) but it is true smile   I now have CSF pooling with wicked headaches but am told the CFS pooling should go away on its own.  On a happy note - my balance and vision issues improved smile  Also - I haven't been able to put a full work week in yet - but remember again - everyone heals differently! Best wishes!  

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