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Hi everyone,
I'm 22 and was was diagnosed with type 1 CM about 2 months ago and my surgery is scheduled for the end of March with my pre op in 2 weeks. Can anyone talk me through what's going to happen, feeling rather nervous and can't find any experience info on other sites
Also, what type of things do I need to take into hospital? And how much hair do you end up losing. My op is at the Walton Centre Liverpool.
Any advice would be hugely appreciated x
1 like, 30 replies
gill17966 rachelle22117
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rachelle22117 gill17966
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I'm so glad to hear that your daughter has responded well to her op and is on the mend. It's not letting me add you on FB for some reason, would love to see the pictures. Thank you for your response x
b2wc97455 gill17966
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hayleybell gill17966
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Positivity is key, everyone recovers differently.
Lovely to hear. 😃
wanda72973 rachelle22117
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rachelle22117 wanda72973
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helen11122 rachelle22117
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rachelle22117 helen11122
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helen11122 rachelle22117
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rachelle22117
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Just a little update, I had my decompression on 29th and all went well. The feeling after really does just feel like youve been hit by a bus but don't try and prepare for it, just go with it and the medication helps lots.I was up and walking within 3 days and eating again.
However, I went home on the 5th but was brought back in on the 6th with severe headaches and had hydrocephalus so I've now got a temporary drain in to get rid of the excess CSF. Feeling really good now though.
The best advice I can give is that once you've had it done, really take it easy cause any over doing it can do all sorts to your head.
For things to take into hospital the most important things to me are PJs, some drinks other than water, and lots of toothpaste etc cause your mouth tastes awful for days.
Make sure your 100% confident with your consultant, feeling in good hands and having all your trust in them really does help.
Good luck to anyone going through similar xxx
helen11122 rachelle22117
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hayleybell rachelle22117
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Good to hear from you hun, so glad you are on the mend, despite the hydrocephalus. You are in good hands, The Walton centre is amazing!
A bottle of squash is great to take in & hide the multitude of fowl tasting hospital water! 😂
Take it easy now you are home & give your body the rest it deserves. You are right about overdoing it. I am almost a year post op, been doing really well, (after an initial really tough first 3 months), a small reminder for me today that I am still not 100% - I went to the cinema last night (first time since the op) got the wrong seats and ended up at the front, I am bad today, horrid symptoms in my eyes, neck, ears & head! Front row seats is a no, no! Must have been the tilt in my neck & surround sound!
Great film though, very uplifting "Eddie the Eagle"!😂🤓
Keep us updated with your progress, if you need a natter, plenty of us here that are post-op to lend an ear.....
wishing you a speedy recovery....
🤕
Dizzyjct rachelle22117
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