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Symptoms getting worse

Posted , 5 users are following.

tessy31
tessy31

Hi, im waitining to c a nuerologist about my current symptons. Pins and needles in right side of body and numbess, also balance problems and nerve pain in wrist and arm. Im just worried because i think my symptoms are getting worse.

My doc gave my aciclovir and predesolone for a week 13 tabs a day. When i finished the course the followin day i was just back to square one with no control and complete muscle weakness were i kinda have to shuffle along instead of walkin normally. Im now experiencing tightness just at my ribcage were its not sore but very uncomfortable. Could this be an 'ms hug'? And i suppose am concerned tat maybe these symptoms havent got better because theve already being damaged?? If that makes sense. Im just worried tat someday ill wake and ill not beable to walk properly. I also have footdrop which is making my mobilty even harder! Im only 31 with 2 young kids. How long should i ecpect to wait for an Mri app? Im so afraid tat my bodys already damaged. I also had double vision 4 years ago for 8 weeks. Thanks for listening.

1 like, 6 replies

6 Replies

  • TURNER55
    TURNER55 tessy31

    Posted

    I have alot of the same problems and had the mri and the doctor said what I have a mild type of ms.

    Good luck.

  • Oddity
    Oddity tessy31

    Posted

    I have or had some of the same symptoms you have had. I am currently also being worked up for MS. If you don't mind me asking, why are you taking acyclovir?
    • tessy31
      tessy31 Oddity

      Posted

      Not really sure why i was taking it think the predesolone was for inflammation. The tabs did keep my symptons at bay but they didnt stop tem. Am struggling with mobility cant drive because my feet feel like their frostbit and have really bad balance. Def feel much older. Lol
    • Oddity
      Oddity tessy31

      Posted

      I'm sorry to hear you are having so many different symptoms.  The neurologist will do a brain MRI and possibly a spinal tap.  My brain MRI had small lesions, but numerous for my age so they are going the route of MS. I asked about acyclovir because my issues started after I dated someone that had herpes.  I was on valcyclovir for a while myself thinking if it was herpes then maybe the meds would slow the virus from attacking my immune system. 

      Anyhow, I saw a naturopath and she has me eating healthy and taking a bunch of high end vitamins and supplements to help with my immune system.  That is very important when it comes to MS.  You may want to look into taking powder magnesium and calcium supplemtents.  They help with nerve issues.  I'm sure you doctor already checked your vitamin b levels, but those play an important part in nerve issues as well.

  • duncan83338
    duncan83338 tessy31

    Posted

    hello tessy31, if you ask me I really dont think that the care system in the UK have a single clue about treating any of the number of serious/terminal illnesses that ravage the bodys and minds of so many people. I have MS-RR, I call my condition MS-PT (progressive-terminal) as I have had no conclusive results from either my doctor or neurologist, Ive had my MRI and spinal tap, My neurologist is a complete waste of time,he told me i might have MS after my doctor told me I do have it. to be truthfull Ive known I have ms for over a year, ive lost my job and my ability to drive, ive had all the symptoms you could imagine allways down left side but recently started havingmuscle spasms on right leg and arm, I also have cerebral vascular disease from a stroke I had when I was 19 (im 44 now). Im on no medication, they keep trying to give me anti depressants that dont have any affect on me,probably something to do with the fact that I no longer have thoughts or memories or dreams,or if I do Ijust dont remember them anymore. I used to have a vibrant colourfull mind,but no more, its all gone, I used to be an artist, Im not one anymore, Im nothing, I have nothing, I think of nothing, I feel nothing exept this thing thats eating my mind and body. Ive stopped harrassing the doctor and neuro-whatever he is,I managed to get myself a socialworker to help me with all the things I cant do anymore and it turns out that the socialwork department is just as unrealiable as everyone else whos responsability is to help people who cant help themselves. thankfully I can still type and write, and I still have my wit. sorry for goin on but I dont have much company and Its good to talk/type while I still can. I just found out not long ago that the north east of scotland has one of the highest MS populations in the world, and I was all set to take the oil company I worked for at the time to court but it would probably turn out that Im just one of the unlucky ones, like you and so many others, to be in the wrong country at the wrong time. Mabey I could sue the north east of scotland! (only kidding).  :-)
  • tracy35015
    tracy35015 tessy31

    Posted

    Get your B12 tested, your symptoms could possibly be caused by a B12 deficiency. Your B12 should be near the top range of normal or you may be deficient.

    Below 450 pg/mL (or ng/L in the UK) is where neurological symptoms can occur. Most traditional doctors use a range for normal that goes far too low. You may have to look for a doctor that is willing to treat you if yours is in the "gray area" below 450 but above the low cutoff.

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