Thank you for a most informative website. After 2 repai...

Posted , 5 users are following.

Thank you for a most informative website.

After 2 repair operations, I feel as if I have a prolapse once more.

So as to avoid unnecessary repeat surgery I am following an intensive pelvic floor exercise programme with a physiotherapist and a muscle stim unit, before assessment in the standing position in 3 months time.

The most frustrating point to me is that the seriousness of my prolapses never seems apparent even to the most experienced specialists until I am in theatre. This makes the whole process more stressful as I am having to persist to be believed. When lying down or on my side, everything seems to disappear somewhere!

I am just thankful that I have had an experienced consultant who really listens and does not just send me away.

[i:309f457628]This message was automatically imported from the original Patient Experience[/i:309f457628]

0 likes, 7 replies

7 Replies

  • Posted

    I can empathise with your situation.

    I have had distressing symptoms for months but my Gynaecologist says there is no real problem and surgery is inappropriate. I have pain that is increasing and now repeated bladder infections. I am beng told that all women who have had children have this amount of prolapse and being made to feel hysterical. The original diagnosis of cystocele by GP has grown to rectocele as well and just this week to urethrocele but no help is offered other than referral to the pain clinic and 3 months of antibiotics. My gyny does not think it is possible to have general perineal, vaginal weight and discomfort, anal pain, and very low back pain as a result of prolapse. My research seems to indicate otherwise though. I am at the end of my tether, and feeling very depressed as well now.

    [i:88386e5964]This message was automatically imported from the original Patient Experience[/i:88386e5964]

  • Posted

    I am interested in your comments. I have a vaginal prolapse and was offered surgery, with a possible hysterectomy. It seems to affect my bladder, and I also get very constipated sometimes. However, I don't like the idea of surgery and although it has all been booked, I am toying with the idea of opting out until it becomes worse - if/when it does. I am 61 years old, 62 in June. Anybody got any ideas?

    [i:2c918863b4]This message was automatically imported from the original Patient Experience[/i:2c918863b4]

  • Posted

    I have now had 3 repairs, two in the same year only 2 months apart. Like you everything disappears when lying down!. did your physio work? I am now in the situation where my prolapse is back as bad as ever, last repaired in 2004, and I really do not relish further surgery. I had a hysterectomy in 1986, and I am still fit and active and not overweight, age 56. Any ideas from anyone else. sad
  • Posted

    Hi...

    Well, I am the person who started this thread, so I can report back now.

    The 3 months intensive physio treatment certainly helped my pelvic floor and helped teach me how to do the exercises properly. It also got me into the routine of exercises and convinced me of the value of them.

    However, although it improved my cystocele, my rectocele was beyond help and I ended up having my third repair last February after all. Sure enough, I had to be examined under anaesthetic for it to be found, but Ican honestly say I feel great now. I am hoping to avoid a fourth repair by avoiding heavy lifting for life and keeping up these exercises to maintain the muscle strength in the pelvic floor.

    I am very pleased I did the 3 months program as when I went into surgery, I knew that I had tried everything.

    I have tried to be honest. I do sympathise! Good luck. smile

  • Posted

    You were really blessed to be able to work one on one with a physiotherapist. Unfortunately this was not available for me. For all of us women who are unable to have this attention I would like to recommend a new app (Kegel Aerobics) It has been a godsend. It is a completer physiotherapist program right in your smart phone. It reminds you to do them, starts you as a beginner and takes you up at your own speed.

    After 7 weeks of twice a day exercises I am continent, vaginal prolapse is improving. Actually having sex.

    Search for Kegel Aerobics on your smart phone.

  • Posted

    Surgery is NEVER the answer to prolapse probs. Failure rate is very high, as is the repeat rate.

    Best to concentrate on ''posture'' therapy as per the Whole Woman site. There is no actual cure for female pelvic prolapse, but Christine Kent's posture - WW posture - can certainly help stabilize it without the use of surgery. In fact, the whole point of her ''posture'' therapy is to help women and prevent them from using the surgery option.

    Once a woman has surgery the chances of her having to have repeat surgeries down the road are 75% and gthe problems get worse after each surgery.

  • Posted

    I had surgery last July to remove mesh from previous repairs for cystocele and rectocele,however since Dec my symptoms have returned including constipation,feeling bloated,heaviness and a visible bulge.Any advice for surgery that does not include mesh?I haven't been examined standing before my ops & think sometimes that my surgeon does not realise my symptoms seriously affect my lifestyle.

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