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This has been going on too long, what else could it be?

Posted , 7 users are following.

D14
D14

So I have had bowel problems for 13 years. Had every test and medication (endoscopy,colonoscopy, endless laxatives, enemas, stool softeners) nothing substansial showed up so was told it was ibs. Nothing has helped.

I have been told I have slow transit..anismus (rectal muslces dorn work properly) and i have B12 injections every 10 weeks.

I had a laparoacopy earlier this year (suspected endometriosis-but it was negative) however my surgeon said that my intestines were HIGHLY inflammed and "not at all in a good condition"

I am aware thay with ibs you do not get inflammation of the intestines so could this be Diverticulitis???

Or any other suggestions welcomed!

0 likes, 14 replies

14 Replies

  • martin31040
    martin31040 D14

    Posted

    Hi, maybe you need a lot of probiotics? things that may help, coconut oil, olive oil, fermented foods, chia seeds soaked in water and fodmap diet.
  • D14
    D14

    Posted

    Hello. I have tried every diet going with no improvement.

    Also I have anaphylaxis to nuts/seeds and alot of oils so finding it really hard to find things to try.

    I am almost certain there is more going on. Any suggestions to discuss with my doctor?

  • leeniepie
    leeniepie D14

    Posted

    Sounds like you need to go to a gi specialist. Nothing you eat will change it if it's inflammation like you described. You need to be checked for inflammatory bowel disease (crohns, etc)

    • D14
      D14 leeniepie

      Posted

      @leeniepie I have been tested for crohns and ulcerative colitis previously but this was about 9 years ago now. Would you push to be tested again?
    • leeniepie
      leeniepie D14

      Posted

      I would seeing as a surgeon said your intestines look bad. IBS does not cause that
  • caroline79096
    caroline79096 D14

    Posted

    Yes im much the same. Going for more tests as so inflammed. Bloated, slow transit feel yukk. Worth pushing to go again, as 9 years is a long time.

    Alot can change.

  • pippa58442
    pippa58442 D14

    Posted

    Diverticulitis would have shown up in your colonoscopy as inflammed pouches in your colon if you had this.  Some people with IBS can experience more inflammation than someone without IBS.  Has your doctor ruled out IBD such as Crohns, ulcerative colitis, or microscopic colitis?  If everything has been ruled out, you will be diagnosed with IBS. Some people find that nothing helps their IBS which is a chronic condition which can disappear for a while but comes back.  It can also be constant..

    Whereabouts was the inflammation?  Was it in your large intestine (Bowel) or your small intestine (stomach)?  If your stomach lining is inflammed, this is known as gastritis.  Has gastritis been mentioned?

    • paul75665
      paul75665 pippa58442

      Posted

      Interested in your comment about some people with IBS experiencing inflammation. I was under the impression IBS didn’t cause inflammation. Is this true? Where did you hear about this? I’d be very interested to know where you got this information. Many thanks.
    • pamela2016
      pamela2016 paul75665

      Posted

      Ibs doesn't cause inflammation it's inflammatory bowel diseases that cause the inflammation or bad bacteria from antibiotic use killing all the good bacteria out.

    • pippa58442
      pippa58442 paul75665

      Posted

      Here is a possible explanation from Medecine Net

      Although some patients may show microscopic areas of inflammation in IBS, the causes are speculative and may include hyperreactivity to bacterial gut infections, accelerated or delayed transit of contents through the GI tract (diarrhea or constipation), and abnormal bowel contractions caused by triggers such as foods or stress.

    • D14
      D14 pippa58442

      Posted

      Im not sure where it is.

      My follow up appointment is at the end of june so I will ask then. This was a gynaecologist so im not sure of je will be able to identify specifics?

      Um years and years ago I was tested for crohns and ulcerative colitis yes..both negative. I jave never heard about microscopic colitis??

    • pippa58442
      pippa58442 D14

      Posted

      They can only test for this by testing the tissue under a microscope.
  • pamela2016
    pamela2016 D14

    Posted

    I have the same issues as you but I have ulcerative colitis and recently had colonoscopy told not active ibs I'm losing weight due to this digestive issues it's hard I barely eat if I don't have dirreah I barely go and the bloating is horrible. I know hormones can mess with digestive system but geez this bad it's unreal. I just want to eat and everything work properly I can't take it I'm sorry your suffering with digestive issues too

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