This might be a sign the dose is too high....

Well, I'm glad it happened in the store or I would not have thought to put it on here.  We always need to know the little things that show we are not on the right dose.  As soon as I got back home I was ok.  My irritability probably came from a blip that I'm experiencing now that the job has been left aside.  The job will be there if and when I want it and it has happened at  a good time since the holiday season is approaching but it still increases the anxiety - hence a blip. 

Where are you just now Lois, i thought I saw Chile - when do you get back to Florida if you are there.

Jo x  

Yes my residence is Florida ...but my husband's job takes him out of the country...

I will be back for the holidays..

But of course.technology is amazing

I find this conversation fascinating.  Johmac ...   what other signs are u talking about when the dose is too high? 

Lois, what herb that will make a person tired?  I was going to get that root for him YEARS ago, but always to put herbs with meds.  

Brooks paced like crazy maybe until a couple of weeks ago.  If he had a Fitbit watch on ..  it would have blown up 😜

It's call kalms...it has valerian root..which calms you and relaxes .with celexa is a bit more .I want to say sadating..

To my fellow Jo..  what signs do you know of that a dose it too high?  

Fellow ..lol

why don't you take it?  

Hi jojo

I don't really know all the signs but i think the professionals know certain things that tip them off as to if the dose it higher than it should be. I found it strange that she asked me that and it didn't dawn on me til I was at the shop and began getting irrirated and did a little annoyed pacing myself.  I think the pacing the psych referred to was if you are alone and pacing, I also heard that hand wringing is a sign, maybe look it up. I never asked the psych specifically but i remembered my friends wife telling me they lowered the dose when he was wringing his hands.  Sometimes we can find info online. 

Because I have my ambiem for sleep and my zanex for emergencies...you people say it's natural ..but nothing is natural that's bottle....

Wow jo I also had that wringing of the hands for the duration of 20...wow....

So then maybe there is something to it if you found the dose too high.  I looked it up and it is when you're in a very anxious state but I don't recall people on here who were on a dose that was right for them mentioning these habits so it could be only if too high.  I haven't had it since I was put on the 40 so maybe that dose is working for me.  Very hard to know all about this stuff - sometimes we just find things out by accident and paying close attention.  

 

Yes...but since I am a low tolerance to meds person...I could only take small milligrams of any medication.over the counter or prescribed.

So then it makes sense that these are signs of a wrong dose.  Interesting !!! 

My saw 2 diff psychiatrists and 1 said the dose was too high and the other said it's too low.  I have little faith in his doctors.  And because he's autistic and can't speak for himself, they have no problem telling me "sorry can't help him anymore ". 

So I really don't know what signs!

I think you'll probably get more info from people here who have experience on this stuff. I don't sympathize with doctors, especially when they are namby pamby about prescribing. Everything is theory with them and a textbook NEVER will explain what the patient is going through. Only people like Kate, Lois and others on here who have gone through the dark tunnel and you find similarities in what they say, will be the best gauge. 

Absolutely.. every thing you have call out ... happened to me when it was high dose... my irratibility was out of this world...it was like a bad illegal trippppppppp.

Jojo,  I don't know anything really about autism but research research and research could be helpful.  Find others who are in the same situation and maybe it will lead you down the right road.  We here are mostly adults going through it giving the way we feel.  I think there must be places online that you can connect to for a child who is unable to relay what he feels. 

I know it's not funny Lois because I've had days of that irritability and it just is so horrible when you want to rip your own skin off but you have a way with words sometimes.  lol

You have a point Jo..I know JoJo gets info and comfort from us.and I know her son's circumstances are different than ours...his mother right now is the one that makes his decisions..so on top of maybe her finding some information from researching ...this forum I'm sure releases alot of stress ...because of doctor's lack of knowledge from this med.im praying for Brooks to recover..

Yes I tell it raw...I don't want to sugar coat anything...

Yes, and she should stay on here for the moral support she is getting which is fantastic but it's got to be so hard when you can't communicate with the one who is suffering.  Maybe there are websites and forums that have common areas of concern.  I will see what i can find myself but like i said, I don't really know much about autism - maybe it's time I find out.  

Fantastic..Im also searching...

jojo - I sent you a link on the PM that have forums for parents with autism children.  Have a look through them to see what you can find.

 

The thing I'm having trouble with is comparing her son to similar autistic children with zeisures that are on the same meds like her son...

I know everyone's chemistry is different .but at times there's only comparison left..

and because a child with autism hasn't fully developed, we have no idea of what his symptoms are.  There are probably commonalities and if so, the poor little guy isn't having fun, even adults find this so confusing but I'm sure there are parents who will be able to help a bit more than us who have gone through some of the difficulties.  

Well said!!!!!!!

Absolutely ..I told JoJo a while back that perhaps she should look into a different forum...but I know sometimes any forum your lucky if anyone gives you a hand... katecogs is the about the only one that made alot of Sense to me...I can only imagine

Never give up hope jojo - parents are probably the biggest crusaders on the planet when it comes to finding treatment. I'm sure you'll get there 

Yes, and I'm sure there is a Katecogs in the autism world if you keep looking. Kate explains it all and I don't care how many times she says the same thing over and over. I'm still finding her posts that I haven't read before and they are spot on to what I'm going through.   

Yes those repetitive post of Kate's are mind curing ..thank you jesus

Awe Lois...  ?.  You remembered his name 😊

Jo, he is 19 years old and was a wild fun fun fun kid that I was planning a vacation to Germany with.  Two years ago the only problem I had was paying for all of that cell data he would use.   Then we were in a car accident and that's how the seizures started 😢

Then I went to a top neurologist, head of his class blah blah blah and he forced Brooks to get anesthesia for a test that was useless!   He woke up from the anesthesia like this!  

So I have zero respect for doctors!

oMg....

Oh my goodness, jojo - for some reason I thought he was about 4 or 5. Pardon my inexcusable ignorance.  I have been working lately so I don't have a lot of indepth knowledge of all the posts. I did spend most of this morning looking but there are so many.  That is an abomination that this should have happened to a young man. I am so so sorry. 

 

Question.did the neurologist have anything to say about his anxiety .. because his the one that order his test..and cause this drama for your son.

I'm going to sign off ladies,  I wish you a good night and I'm sure we'll chat tomorrow.  

Blessings 

Jo x

Good night ladies .sleep tight.😴

I just got Brooks ready for bed.   It's a 1 1/2 process 😡.   

Good night Jo 😊

Lois..  I sure did.  I called repeatedly for months!  He kept telling me "I never heard of that".   This one psych feels Brooks got mania from the anesthesia.  Along with the PTSD.

What a looser..