Thyroidectomy
Posted , 9 users are following.
Hi I just wanted to know if anyone has had a thyroidectomy?
I have been told by my Endo that this is the best possible way of resolving my Graves as I have had allergic reaction to Carbimazole and PTU is making me feel very depressed. Because I have the Thyroid eye disease I'm not eligible for the Radiation.
My T4 Levels are currently at 46.6 (they have come down from (60)
0 likes, 9 replies
Nisee laurren1001
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laurren1001 Nisee
Posted
Thank you - I'm concerend about the Scaring? I have also been told that you have to be on mediaction indefinitely after that?
Nisee laurren1001
Posted
Agree with Ann, definitely worth investigating natural solutions. I'm waiting for a book to be delivered in the UK (just published). I'm going to try that but am prepared if it doesn't work to go for the thyroidectomy. We are all different and some might respond to natural methods where others might not. I recommend joining the 'Thyroid Group UK' page on Facebook, lots of good info and support.
Regarding the scar, it depends upon your own body. Unfortunately, I've got a keyloid scar which sticks out like a ridge - in childhood it never happened any other times, again we all heal differently. At first I used to use make up but only for a year or so, for the last 19 years it hasn't bothered me. Sometimes people look at it but it doesn't bother me any more.
If you have the full thyroid removed you will definitely need medication for the rest of your life. Again, current thinking in patients I've met through Facebook is that it's best to go down the natural medicine route. Unfortunately, this is not available in the UK and people in the UK are ordering on the internet, with some very promising results. Some doctors support this and others do not. Read up before you make any decisions.
Where abouts in the UK are you? I'm in Swindon, Wiltshire.
Best wishes,
Nisee
acd laurren1001
Posted
I too bad reactions to both carbimazole & PTU & was a week away from having surgery when I discovered a lot of information all at once which lead me to believe it is possible to heal naturally - not that Endos agree!
I don't know what your doses of meds have been but for me, looking back, I was given too much too soon & my body could not deal with it. When I was on high dose of carbimazole I ended up in A&E and was told I had effectively overdosed on medication! The Endo switched me to PTU & I had horrible side effects, swollen joints, massive weight gain, itching, heartburn etc - Endo said they were nothing to to with the drugs & told me to go to a physio! needless to say once I stopped taking meds all the issues went away.
However, I then made the mistake of leaving myself untreated for 5 or 6 years, which was a really stupid thing to do. I then became very ill & developed rheumatoid arthritis 2 years ago. I started back on carbimazole but on a low dose which was then gradually increased & I was fine doing that & able to tolerate it.
I recommend you do as much research as you can, basically the thyroid is not the problem it is you immune system which is out of balance. Even if you remove the thyroid you don't fix what is actually wroing with you & it could mean you may develop another auto immune disease in the future because you have not got to the root of the problem.
It is not an easy path to go down, it requires massive diet and lifestyle change but it's up to you to take charge of your own health
There are some websites which may help you.
Also consider seeing a naturopath, they will help get to the root of your health issues.
By the way I have read that people with TED have had good results by supplementing with selenium - perhaps you could research this some more.
Don't be pushed into making an irreversible decision.
Good luck in your journey back to health.
Ann
nikki85100 laurren1001
Posted
just make sure full thyroidectomy as I got graves in 2013 and as not recommended to have a further op have had RAI this time to treat and am now on levothyroxine, which seems to be working.
good luck with your treatment
derek86752 laurren1001
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jubedu laurren1001
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debbie38655 laurren1001
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irene98300 laurren1001
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