Timescale of diagnosis to Neurosurgeon appointment
Posted , 3 users are following.
Hi everyone,
I am 32 have have just recently been diagnosed with Chiari Malformation on New Year's Eve, after having tests and MRI scans for problems with my neck since April 2015.
I have a C5-C6 prolapsed disc in my neck and deterioration of my lower spine, but when I was told that I have Chiari Malformation, everything clicked into place. I realise now that I have had the symptoms for years but never thought anything of it.
My case was referred to a Neurosurgeon in Stoke by my spinal surgeon in Oswestry on 19th January.
My symptoms have become increasingly worse during the past 6 months, and I am now having problems with my levels of concentration, speech, and I'm also dropping and bumping into things more often.
I'm just wondering how long others have had to wait from initial diagnosis to an appointment with a Neurosurgeon.
0 likes, 6 replies
gill17966 keali1983
Posted
keali1983 gill17966
Posted
I'm not worried about any aspect of it really as I have a genuinely positive nature, which helps significantly. I'm kind of a 'just accept it and deal with it' person.
I'm concious about timescales because my brother's wedding is in August, which I don't want to miss, and I booked a holiday (many months prior to diagnosis) to Florida for this October.
gill17966 keali1983
Posted
b2wc97455 keali1983
Posted
1. choose and Book (all patients can choose and book the services they would like to be treated - ie if patient would like to choose to be neared their faily/friends/the best specialist/ even if the place if 4 - 5 hours drive)
2. The waiting list should not be more than 18 weeks (if they can't provide you less than 18 weeks - they will come back to you and giving you alternative choice)
3. Patients have the right of better services - closer to home.
So, basically we are so fortunate to have NHS - the best health care in the world.(no matter how many people complaining about it.. LOL)..so if you are worry,, go and call the ANN CONROY NATIONAL TRUST..the nurse there will be able to help you..there are llist of chiari specialist near you..or talk to them..but this site is fantastic..you can also go to to ask dr Sarah jarvis on this blog..she knows lots,even though er specility is in diabetis she knows a lot about others. Good luck...I am chiarin, I am waiting for my decompression - this was my 3rd opinion..it took me nearly 2 years to get to this stage...!!!!!!
keali1983 b2wc97455
Posted
b2wc97455 keali1983
Posted