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TiNinths

Posted , 6 users are following.

PiliPalaB4ch
PiliPalaB4ch

Good night my fellow owls. I was wondering if anyone else's tinnitus is driving them round the bend? I can't hear what people are saying to me, I can't concentrate ( the fog doesn't help though) and this horrible whiney high pitched screech is all I can hear, the hellelujah chorus would be a better option to hear 🙊 

i always have had it in the background, but now it's the always there. Is it another joy of FM or something else? Night time is impossible with the pain and tinnitus .... Thank goodness for art therapy books to stop me from screaming. If only for a short while before my wrists and fingers object, grrrrrrrrrr, 

2 likes, 21 replies

21 Replies

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  • PiliPalaB4ch
    PiliPalaB4ch

    Posted

    Blooming predictive text the title should read TINNITUS 😂😂😂😂
    • emily253
      emily253 PiliPalaB4ch

      Posted

      I suffer from constant loud tinnitus.... I'm not sure which came first, but i have had it as long as i can remember. I know allergies can make it louder, as well as the quiet ! I always have noise around me, that helps a bit, but i get it having a hard time hearing people, mine gets like that off and on. My hearing is usually super good, in fact they said i have above average hearing.... Yay me!!
    • PiliPalaB4ch
      PiliPalaB4ch emily253

      Posted

      Hi Emily

      I think you may have answered my question! I know that it has always been there but it has been so loud this past few weeks it's unbearable almost. My hay fever has been bad in that time too. The other thing that is different is I am not at work, as a teacher of boisterous sixteen year olds, life is a lot more quiet, although there is plenty of noise around me. But obviously less than there used to be! 

      I always thought I had good hearing but probably not above average!!

  • lisa52101
    lisa52101 PiliPalaB4ch

    Posted

    Hi PiliPala,

    at last I've come across someone else who has tinnitus and FM. I tried all sorts of things to keep my tinnitus under control, white noise, meditation and so on. Recently I perforated my eardrum and the noise inside my head drove me crazy. I don't expect what I say next to be of any help to you but I found relief when my husband was diagnosed with sleep apnea and he was given a chap machine. After feeling deeply for him it dawned on me that here was something else to disturb my sleep further. Strangely it seems to have really help the both of us. Even with the recent ear problem it definitely seems to have helped me.

    Im sorry that's not much use to you but I hope you find something that works for you too.

    • PiliPalaB4ch
      PiliPalaB4ch lisa52101

      Posted

      Hi Lisa

      I too have perforated my ear drum on several occasions, the tinnitus is really inside my head. I think my next plan is to buy a wireless speaker pillow and listen to my audio book to see if that will help me sleep!

      I am so glad you have found something to help you, it must be such a relief 

      i'll let you know how I get on with the pillow idea! Pilipala x

  • kaz_40
    kaz_40 PiliPalaB4ch

    Posted

    I suffer from tinnitus it drives you blinking mad. My hearing is getting worse Imforever saying what did you say I drive my son husband mad at times because I cant hear them. my son ends up saying it doesnt matter mom forget it. and for some unknown reason I didnt know I was doing it but a friend said your talking quite loud cant work that 1 out. take care gentle hugs
  • Casper4081
    Casper4081 PiliPalaB4ch

    Posted

    Shortly after I was diagnosed with RA I was given plaquenil. Within a week I started hearing buzzing sounds. My husband thought I was nuts! It has never gone away & at times I have multiple

    pitches going on. I learned that it is hereditary. My mom &

    brother have it also. It has definitely gotten worse over the years but most times I can tune it out. I am definitely very sensitive to noises like clapping, my husband hitting the return key in his

    computer(!) & odd little noises. It makes my ears feel like they

    momentarily inflate then release. It's hard to describe but pretty painful. I'm sure one of my fellow tinnitus sufferers can

    sympathize. Good luck on your journey to peace & quiet <3

    >

    >

    • kaz_40
      kaz_40 Casper4081

      Posted

      Hi casper I suffer with tinnitus and very painful earache all the time. I cant stand loud noises knocking banging shouting just some one tapping drives me mad. Ive noticed my hearing is getting worse, I didnt know I was doing it but my friend told one day that I was talking quite loud. yet I wasnt a ware I was doing it. the joys of having fibro take care gentle hugs
    • PiliPalaB4ch
      PiliPalaB4ch Casper4081

      Posted

      my mum and grandfather had tinnitus too, I did wonder if it is hereditary. I am really fed up with it just now. I have had it for years, but just lately I can't phase it out. Hey ho onwards and upwards I will continue to try different strategies until I find one that works for me! 
  • julie43903
    julie43903 PiliPalaB4ch

    Posted

    I get dreadful tinnitus PilipalaB. Really really bad and have so at the moment. It keeps me awake every night and I never feel v rested. I've now started listening to an iPod. It doesn't do a great deal but it helps xx
    • kaz_40
      kaz_40 julie43903

      Posted

      Hi jule how are you doing hun, Ive just taken my dog to kennels as going off on hol today for a weeks rest and recupperation and some quality time with my long suffering husband. he laughed at me this morning as I cried when I left my dog charlie at the kennels. last night I was in agony with my legs didnt sleep at all. my fault was on the go none stop yesterday washing cleaning trying to get everything done before going a way. then last night I fellt ill must start learning to pace myself. and what gets done gets done and what doesnt doesnt take care will be in touch when back from hols gentle hugs x
    • julie43903
      julie43903 kaz_40

      Posted

      Have a great time Kaz. The weather is looking good. I know what you mean regarding the dog. My ex and i have joint kinda custody of our little Westie Bert. I really miss him when he's around at his.  You have a great time and let hubby spoil you. My hearing is literally gone with the high pitch of the tinnitus. Awful isnt it. Love and hugs and let us know how your break went xx
    • PiliPalaB4ch
      PiliPalaB4ch julie43903

      Posted

      Thanks Julie I so understand how you feel- it is driving me mad at the moment, I just can't phase it out like I used to. I am going to try speaker pillow to see if that helps! I will let you know xxx
    • kaz_40
      kaz_40 julie43903

      Posted

      Hi julie how are you doing hun. Just got back today from hols. the journey knocked me about I was in alot of pain for 3 days. but the view we had from the apartment we stayed in was worth it. going to bed hearing the sea when we went to bed and hearing it in a morning when you woke the sun sets on a night time were stunning. we had 2 days rain but other than that it was hot. my husband spoilt me rotten. we had some lovely days out we had a lovely break we are both shattered from the journey. we are going to pick the dog up tomorrow cant wait to see him Ive  really missed him. I had tinnitus all day yesterday and again today. Im finding my hearing is getting worse I have to keep asking people to speak up. Also did you say you suffered from IBS I dont know if it would be of any help but I take Imodium especially if were going out my Ibs was bad on the day of the hol so I took some Imodium 1hr before journey and I was fine. it I thought it may help you where works concerned. thinking of you take care love gentle hugs xx
    • julie43903
      julie43903 kaz_40

      Posted

      Hello Kaz, delighted to hear you had such a good time. It's lovely hearing the sea, isn't it. That in itself would perk you up. Yes, I suffer badly frommIBS. I take Imodium all the time. The tinnitus is awful too. I'm heading back to work in around three weeks time. I'm starting off with two days a week and then gradually building up if I'm able. I bet you missed your little man. As i say when my man goes to my ex three days a week i miss him too. He's a lovely little West Highland. What breed is yours? Glad your holiday went so well. I'm thinking of getting away for a few days at the end of August with my son. It's just nice to have a chage of scenery. Gentle hugs to you too xx
    • kaz_40
      kaz_40 julie43903

      Posted

      Hi Julie I missed charlie so much when we were away. weve now got him hes had a bath hes now a sleep. It would do you and your son the world of good to get a way. I love the sea side where we stayed we had a sea view when you walked out of the door you were right on the prominade. it was lovely going to bed at night listening to the noise of the sea it helped me to get some much needed sleep as I found it so relaxing. then waking up to the noise of the sea as well it really helped me to relax. charlie is a bichon frize he is 6 this year bless him I love to him to bits. I cried when I had to drop him off at the kennels couldnt help it. a change of scenary does you good I love to get out into the country side. We use to walk along canal paths but I cant do that no more I would walk for miles with charlie.I would love to move to wales live by the sea. the views in wales are stunning, the sunsets we saw were lovely. I had bad tinnitus while I was away also earache my hearing is getting worse. wish their was a cure for fibro never mind plod on as best we can take care hope you have a good week end gentle hugs xx
    • PiliPalaB4ch
      PiliPalaB4ch kaz_40

      Posted

      Hi Kaz

      I do count myself very lucky to live in a part of Wales with beautiful beaches and magnificent mountains, it really does lift my spirits to go and sit at the beach when I am feeling low and painful! The only thing missing at the moment is the sun and hot weather!!  Pembrokeshire is beautiful.

      Gentle hugs hope you are having a good weekend! 

    • kaz_40
      kaz_40 PiliPalaB4ch

      Posted

      Hi pillpalabach do you know tywn near aberdovey in midwales. we stayed in an appartment in tywyn. we had a view from the appartment of the sea and the sunsets at night were stunning to see. I love the sea and the sound it makes I find it really relaxing, I loved sitting in the appartment at night just watching the sea. I would dearly love to live near the sea. we had 2 wet days the rest was hot at times. it was so lovely to be a way and try to relax. Ive never been to pembrokeshire I will put that on my list to visit. Hope your not in too much pain and your having a nice weekend take care gentle hugs
    • PiliPalaB4ch
      PiliPalaB4ch kaz_40

      Posted

      Hi Kaz I do know Tywyn, it is beautiful, but Pembrokeshire is more beautiful  lol! I moved here from Cardiff 28 years ago, having spent every free moment before that here. It is lovely here, please come and visit, you will love it. Not having too good a day today, but I am sure tomorrow will be better!! As you have been to Wales you will understand what I mean when I say gentle cwtshes to you! Xxxx ( hugs if you don't know) 
    • kaz_40
      kaz_40 PiliPalaB4ch

      Posted

      sorry to hear your not having such a good day hun hope you have abetter day tomorrow. thank you for my welsh hug cwtshes to you x
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