Treatment with oral Estrace and topical testosterone

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I was diagnosed a few months ago after experiencing a long period of severe discomfort during which sex was not an option. I am currently being treated with oral hormone replacement (estrogen) and topical treatment with testosterone cream. This seemed to help my itching, burning, and general discomfort tremendously for a while, and sex became possible again. But now I am having a severe flare up. Exhausted from not being able to sleep. Severe itching wakes me up at night. I am also noticing an increase in fusion.

Wondering if there are others out there who have undergone this treatment protocol and what experiences you have had.

Thankful to find this forum but feeling confused and overwhelmed.


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  • Posted

    No, I have not followed that protocol. I use Advantan fatty ointment and Dermeze for moisturising. Are you seeing a doctor who specialises in LS? I attend a clinic at Mercy Hospital dedicated to this problem. I think you need something like my ointment to actually address the LS. Where are you? I am in Australia.
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  • Posted

    Your regime was one I encountered on an old research site. Have a look at the dr. Gold steins webinar screen shoot the slides print them off and ask your medic what his / her thoughts are about the current modern regime. You actually need a potent steroid to help with resucing the scar tissue that have formed  from your severe inflammatory episodes. Jeep moisturised. You don't say your age group, there are differnces with the possible options available. Oestrogen topically is often given for low levels that cause vulval dryness after menopause, but is normally. Unnecessary when HRT is prescribed.. Testosterone is not normally used these days, perhaps you need a combined HRT regime. 

    Do look at the various threads to find what most people find of help. 

    Basically keep the area clean protected from body fluids and cool 

    DO NOT SCRATCH you will prolong the flare up and make it MUCH worse. When really hot and unbearable crushed ice in a plastic bag wrapped in a damp cloth may help, some people found sleeping with a pillow between the legs to allow air flow. Cool the area with a cool setting on a hairdryer Look at  Hanny's protocol worked for her

    keep all body fluids including sperm off the area, protect with a barrier cream

    take heart it will get better, get yourself informed and take that information to your medic and ask for a change in treatment-or. 2nd opinion!

    good luck Sue

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  • Posted

    Yes!  Thank goodness someone else mentioned Testosterone.  The ointment we normally are prescribed has cortizone, it thins the skin, the testosterone will make the skin thicker and less likely to break or split.  With a flare up of itching I just use plain old calamine lotion that we used on out kids when they had chickhen pox.  Boy...that was a while ago.

    Hope the itching stops.

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