TURP, POST TURP, PAIN

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Had  the TURP Jan 7, 2015. Then three weeks ago the urethea closed up 1 cm from the tip, only had a pin hole to pee through, dr went in with a Van Buren to open that up. One week  with cather again. Now to keep it 16 or better french have to stick this plastic sterile three inch long thing up. Life sucks, still have some bleeding, lots of pain , pee pads and pee starts when I stand up or pass gas. Will this go on for the rest of my life like this ?????? I am 70, have to avoid any heavy lifiting yet etc. 

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  • Posted

    Hi Bill,  I just want to jump in early with some immediate support and encouragement,

    ( Seeing as how I'm over ihere n Australia ).   Most of us on these Forums have experiences similar to your own,  varying only by one or two symptoms more or less ...  and degrees of intensity.

    But,  do not despair.   I don't like to generalise,   but I believe some things will improve over time as your body continues to heal and you refine your management skills.  

    Hopefully before the day is out,  the really capable men who abound on this Site will come crowding in with good practical advice and suggestions for you.  In the meantime,  please be assured you are not alone.

    All the best Mate and don't bother to reply to this

    Regards

    Dudley

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    • Posted

      no bother but thanks for the support. in the consel with the doc they made it sound a cake walk. Like only 1% blah blah blah. 
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    • Posted

      Yes Bill,  you are doing it tough at the moment.  Given the number of men with PCa and /or BPH post intervention problems that 1% is a pretty crowded place !   I'm also in there.  

      But try to not despair.   I can understand that it may sound a little hollow to you at the moment but trying to develop and maintain a positive frame of mind is perhaps the most effective coping therapy.  

      Post 42 x EBRT I developed an iatrogenic lesion in the urethra that was both excised and fortunately benign.  Apparently the Stats on those occurring are ...  3 in a million !  Makes you feel kinda special don't it !? ...  ( In an undesirable way !! ).

      Now,  in addition to loss of sensation whilst voiding and/or attempting to void due to impaired circulation and consequent nerve damage,  I have a distal urethral stricture and possibly another closer to the gland.  I will find out more on 9th April.  

      I currently manage,  in what seems to me at least,  a very complicated physical /mental way of coaxing my body to void over a period of anything up to 7-10 minutes ;  and so far have managed to avoid catheterisation,  but not pads for the cough,  laugh and exertion incontinence.  Even twisting to put on a seat belt can squeeze out 50 mm or so.  

      I have found that a ' time-out ' of 2.5mg of Valium and 1/3 of a Panadeine Forte taken every now and then,  can give a few hours respite which is all I currently need to reset the mental mechanism for another trial period of unassisted coping.  

      At the time of commencing treatment I had  ' a significant amount of moderately aggressive Prostate Cancer '  both sides of the urethra and up against the bladder neck and thought to be already microscopically outside, my by then deformed capsule.  

      My Consultant commented that he was trying to save my life.  So I can only imagine that 12 months down the road,  if I had remained untreated with symptoms then,  of very poor flow,  nocturia and diminished sexual function,  I would now be in far worse strife.   Which realisation promotes a PMA about coping post-treatment with side effects and life in general.

      When asked how we are,  a lot of us can answer without any irony :

      ' Not dead yet '.

      So,  hang in there Bill.  Look back and count the good years. The realisation that Nothing is for Nothing dawns;  and if it was not to be this,  then it would be something else.  

      Now we earn our self-respect by doing it tough.

      Kind Regards

      Dudley

       

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  • Posted

    Bill;  I will hope and pray for it to get better soon.  Its got to be frustrating and depressing.  Stay in close contact with your Doctor- it will get better. 
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  • Posted

    Hey Bill sorry for the problem.  Does that mean that the surgery cause a stricture in the urethea.  Have one from kidney surgery 12 years ago Never know I had one until they tryed to catherter me in the hospital That was a horror story.  My doctor told me I may have to catheter myself.  Then he found out my prostate was the size of a lemon.  Had a urolift done 4 weeks ago.  No more meds and peeing like a horse. Still have the stricture but my prostate is clear. Try all the meds you can before you have any surgery to repair it.  Read up on it first before you decide anything.  Take care and good luck  Ken
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