two days of relief

I'm trying to not complain about all this discomfort because i don't want to bring everyone down around me.. My boyfriend asks how I'm feeling, and i just say im fine... No use complaining, and I'm afraid its going to get old listening to me complain or admit the pain. I'm a proud person and hate feeling like a burden, sometimes i just want to scream i freaking hurt EVERYWHERE! but what good would that do ? It sure is hard staying positive !

Hi Emily

I feel for you.  Fibro is one of those pains that comes and goes and travels around the body. I understand that you feel you don't want to be a burden to anyone especially loved ones.....but with Fibro you must remember to ask for help and learn to say NO!. 

I was like you, proud and just carrying on with life and was a robot to everyone, but I have come to realise it's not the way to go about life.  You are just as important as anyone else and you too need time out.  You have to learn to pace yourself and stay calm and positive and only do what you can, when you can.

You are not alone and peolpe on this forum will give you support and advice.

Gentle hugs and take a day at a time !  x

wish I could wave a magic wand on us all, and make is all better the skin tenderness is down to fibro I have it also. wearing clothes at times is very painful right down to my night wear that are silk. I am very stiff in a morning especially my legs and if I sit for to long the stiffness is terrible. Im getting alot of cracking in my back and legs all what you describe is fibro symptoms and their are over 100 symptoms that you can have at any given time. I would not wish this on body. getting people to understand what we are going through and were feeling is very hard. at least on this forum we are all understand what each other is going through and can support each other as best we can. you must try to sleep if you can and you musnt stress worry, about how your going to feel when you wake up. as we have no control over this condition all we can do is take meds for the pain buy aids to help us walking stick walking frame , anything that will help you to manage the condition. their is no cure fibro can wax and wane you may have a good few days then days when your not so good. you will go through all sorts of emotions  anger crying all the time ive had times when Ive felt like giving up. research fibro get has much help surpport off your gp. its a learning curve for us and its trial error on so many things, as what may suit one person eg acupuncture may not suit another. it may take a while to find what helps you. My heart goes out to you with having young children to cope with. as this is hard enough to cope with it in its self. its made harder for you as your children will rely on you for everything.see what help and surpport their is out their for you. us girls will support you all we can. we are here for each other with out you girls I dont know what Id do youve been a god send for me. Im going a way today for a week but I will be back on the forum when I get back take care gentle hugs thinking of youxx

Hi Emily

Have you tried having a soak in a bath with epsom salts?  For all fibro folk sleep is so important please try and get some "shut eye"    The problem is that we can't plan because we don't know from one minute to the other how we are going to feel.  Fibro is individual to us all and as time goes on you will begin to understand what helps and what doesn't.    The only way I get through is with a good dose of humour.  Those around you  need to understand and accept that when you say "no" or cancel arrangements you are not being awkward and it is not because you don't want to do something it is because you can't.  If you don't know about the spoon theory have a look.  My colleagues know that evenings out after work are just not possible for me if they wish me to function at all the following day.  They still invite me and make me feel "one of the gang" but they completely understand.  If your skin feels tender I have found aloe vera helps a little.   Try and involve the kids in helping - even little ones and help if you make doing chores fun.

Those around you can't help if they don't know.  with family/friends it helps to use numbers out of 5 for how you are feeling that way you don't have to burden them with the exact details just whether the day is good or bad for  you.  Have you been prescribed anything to help.  I can't take drugs because of the side effects but have managed to control much of the pain with diet,hypnotherapy and supplements.

Take care - living with fibro doesn't get easier you just get better at dealing with it.

Whether questions/answers/rants etc we are all here to listen/help/advise or just offer a shoulder to cry on.

its hard adjusting to fibor the condition is so changeable from 1 day to another you have so many ups downs with it. you can some times go into remission where you could have a  amonht or few months where you dont have anything. stressing worrying causes fibro to be more painful. its easy to say dont worry and dont stress about anything as its not easy to do. I dont think you can ever get a way from stress worry. whats harder for you is you have 4 children to look after sleep is very important. any help support you can get please please take it because you need all the support help you can. I know you dont like the though of putting your son into respite care and that I fully understand. but their may come a day when you have no choice. last year In 2012 2013  2014 I spent 7  to 9 months in bed unable to walk kept loosing my speech and it was slured at times I was so ill I thought I was dieing. My gp came out several times a week to check on me and I had to have carers in which I hated as Ive always been an independant person. fibro varies from person to person on the severity you can have  it.  I put it on a scale of 1 to 10 1 lowest 10 m highest Im at the highest. Im having to use a wheel chair now. I dont want to upset you frighten you any way. but we are all different fibro is different with us all. get has much info as you can on it and all the help support you can. we will do our level best to help support each other. Im off on my hols in a min for a much needed break I will get in touch when Im back take good care of yourself thinking of you gentle hugs xxxx be kind to yourself xxxx not hard on yourselfxx youve alot to cope with

Hi i too am full of pain and sometimes i dont want to get outof bed knowing if i move im in pain i take that many tablets icould open a chemist but getting to the point try and relax i know it sounds difficult to do but i know the only thing keeping me going are my children and grandson hugs

focussing on your children will help you also this week I treated my self to having my hair done. it lifted my spirits treat yourself we deserve it x

Thank you all, i guess right now my anger is consuming me...i find myself snapping off about every thing, I'm also finding myself being angry at my boyfriend , totally unreasonable, i just am so angry at what god has taken from me in such a short time..i lost twins on valentine's day 2013, i lost my mother to a horrendous disease and had to watch her lose all her dignity, and suffer excruciatingly in July just 20 days before her 61st birthday, i lost one of my best friends in January, my other best friend and first love ( who named his daughter after me ) in march, and now this. I'm sooooo angry its destructive, if i didnt have my children, i wouldn't be here anymore, i have always had anxiety, but never depression, i DONT know what it is now. All my support is gone, ripped away leaving me to feel completely alone and lost ( though i live with my bf) the world just doesn't feel the same anymore, very disheartening... Even at age 34, i needed my mother.... So hard to understand gods plan... Thank you all from the bottom of my heart to take the time to respond to me.

Oh emily Im so sorry to hear of you all losses, blimey youve had alot to deal with. no wonder your feeling as you are its only natural your feeling this way. loosing your mom is hard, I lost my mom in 2008 I nursed her through cancer watching her fight for every breath she took was heart breaking. I miss her so much and miss her wisdom in life.you have lost people that were a big part of your life and its hard very hard.I can understand you feeling lost and alone as Ive been through it myself. but draw strength from us on here as we know what your going through and how your feeling. fibro is a horrible thing to have I hate it with a passion. but unfortunatly until a cure is found if ever 1 is we can but live in hope we are stuck with it. I really feel for you as you have this horrible thing to conend with that in itself is enough to contend with. but its made harder for you as you have children that rely on their lovely mum. you sound off as much you like we are all here for you. sounding off helps as we know what its like to have fibro, you must get help support from where ever you can. Ive always been a proud independant person standing on my own 2 feet from the age of 12. but we all have to ask for help support at times even when we dont want to. all we can do is take each day as i comes.your right by what you said the world doesnt seem the same any more weve all changed because of the fibro and the affect its having on us. fibro controls us not the other way round  all we can is manage it the best way we can. you take care gentle hugs thinking of you