Undiagnosed Chiari?

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I've suffered from dizziness for 3 years. Constant 24/7 lightheaded dizziness. Since then, more symptoms have emerged, such as balance problems, strong head pulse, forehead pressure, arm and leg muscle ache, problems using hands, and problems with words. I had a lumbar puncture and was told that my csf drainage was unusual (spiked and troughed like a saw edge). I didn't feel any better after drain. No-one has mentioned Chiari (I've had 2 MRI's) but my symptoms seem somewhet consistent. Anyone have any thoughts on what I should do next? Thank you. 

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  • Posted

    Hi ashiode, when you have MRI what did your specialist said? if you have lumbar punture is it by neurologist he/she suspuct you have chiari?, what kind of medication did they prescribe you?, do you suffer form headache on your occipital ( at the back of your head) like some one drilling really pain full..yes..I haqve balance problems, diziness, problems with words,forehad pressure, muscle ache, back ache, neck ache, terrible when coughing, snezzing,mostly when constipating, laughng, inbalanca..sometime walking like a drunken person..or like crab..if I move to quick ..that is terrible....but I was diagnosed with CM1..I did not want to have operation..but as the day went by sympton getting worse..so ..I am now waiting for the operaqtion (CANT WAIT) i will be gald to have it done now, as I cant put up with this condition any longer...but you are not on your own..just make sure..you ask what is the result of the MRI? is it chiari 1 is it with syrn or hydro?, ask your gp..make sure get second opinion..ask to be referred to chiari specialist..if you are in UK go to Ann Conroy Trust  and speak to

    the nurse there..or in this site..Helen..or Clarey or..yeltzer..they are expereinces and are very helpful..they will be able to give you some tips...

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  • Posted

    Have you had an MRI that monitors your CSF ?
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  • Posted

    No, I haven't. Maybe I should look into that. Thanks. 
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  • Posted

    Had Another thought......are you just seeing neurologists?

    Have you asked them for a full report of their MRI findings and also have you had a full spine MRI?  Would be good to rule out anything in the spine that could be causing hand and leg problems.....

    take care now.....

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