Posted , 7 users are following.
Just had some blood tests done. All ok. Been on steroids for almosf two years.
Currently on 5mg just starting the slow reduction.
My vitamin d is 100, which is a good result.
I took vitamin d during the winter and presuming I do not need to take any with that
Result?
1 like, 21 replies
EileenH floramac
Posted
margaret89358 floramac
Posted
i would like to ask another question to anyone out there, I have just started to bruise easily it looks old people when there skin has gone thin I am 58. Is this another side affect of steroids.
constance.de margaret89358
Posted
I am afraid bruising IS a part of PMR. Many of us have 'patches' or 'tears' (they even bleed sometimes)😡. We also suffer from thining skin - not all of course. I found as I Iowered the pred the bruising, etc stopped.
Don't worry, it's not a sign of ageing.
lodgerUK_NE margaret89358
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lodgerUK_NE floramac
Posted
floramac lodgerUK_NE
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lodgerUK_NE floramac
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I just wondered because our Hospital Trust uses 30 to 148.
floramac lodgerUK_NE
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lodgerUK_NE floramac
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I would think so.
To keep mine up I buy (from Boots as they show which country they are made in 90 tablets for just over £5) of Vit D maintenance daily dose - this has kept my Vit D right on track for the past 5 years. I have a six monthly blood test for other reasons not connected, but they always add 'full spectrum'. This because standard tests cost less, but if you need additional stuff then the test cost rises.
floramac lodgerUK_NE
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EileenH floramac
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It would be an idea to get it checked in the autumn - being in the sun without sunscreen is still no guarantee your body is doing the job. I can't remember my husband EVER using sunscreen and we live in northern Italy, lots of sun all year round that is powerful enough to trigger the production of vit D in theory. But his level last autumn was dire - 7! And 80% of the population are said to be deficient!
Anhaga lodgerUK_NE
Posted
Recently had Vitamin D test done and optimum was described as between 80-200. The "optimum" appears to have been raised over the past little while. I was told as recently as last year 150 was high!
EileenH Anhaga
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Anhaga EileenH
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EileenH Anhaga
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The relationship is a factor of 2.5:
Levels of 20 to 40 ng/ml or 50 to 100 nmol are often quoted as "normal range" - but these are relatively old figures and nowadays 30-50 ng/ml or 75-250 nmol/l are felt to be much more acceptable. But you can see it is important to know the units being used.
Of course, the level you are told is low/ok/high depends on which hymnsheet the person is singing from! We have done the reading that tells us that the expert opinion is changing and believe it - others are still stuck at the levels they learnt at school...
karenjaninaz EileenH
Posted
Eileen, I think you mean: 75-250 nmol/l. UK
in the US some researchers suggest 40-60ng/ml being optimal. In my case when my "normal" range Vit D was 30.5 ng/ml I felt terrible. When it approached 50ng/ml I felt much better. When it reached 70 I was starting to go days without needing Ventolin. 70 is the target dose my pulmonary Doctor agreed on to help my breathing and I did.
There is a web site with a Vit D dose calculator to reach desired levels based on weight and current Vit D level. The thing is unless you do a blood test its guesswork. In the US Medicare allows three Vit D tests a year. I test every month myself until I know My dose and level will be stable.
EileenH karenjaninaz
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lodgerUK_NE EileenH
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We keep on banging on about the need for the 'edit' button.
It is not the fault of admin, it is the fault of the tech guys who just do not listen to any of us...............grrrrrrrrrrrrrrr
EileenH lodgerUK_NE
Posted
Don't we just - there was some talk of it but it seems to have lapsed again...
Anhaga lodgerUK_NE
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Do you think there's a difficulty because of the filter?
EileenH Anhaga
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One thing that was said was that people might go back and change things much later - but that is easily dealt with by putting a time limit or once something is replied to it can't be changed as other forums have.
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