1. Community
  2. Infections
  3. Genital Herpes Simplex

Vulvodynia anyone?

Posted , 5 users are following.

ouch109
ouch109

Has anyone out there gotten a vulvodynia diagnosis? Im interested in your experience.

I just got the dreaded diagnosis and i am convinced its herpes related.

1 like, 11 replies

11 Replies

  • caroline36678
    caroline36678 ouch109

    Posted

    Sorry, i do not have an answer for you...

    But i want to ask what are your symptoms? Because it bas been painful down there since my first break out 7 weeks ago...and itchy also...

    Thank you for sharing!

  • ouch109
    ouch109

    Posted

    I have chronic nerve pain in the vulva area. It feels like yeast or bacteria burning but i am negative for everything except hsv2. It sort of moves around, sometimes its the labia, sometimes the vaginal opening.

    I am told its nerve damage (vulvodynia) from chronic infections.

    I dont know how long i have had hsv2 but i suspect a long time. I have either never had an ob or i get internal lesions only. I cant help but wonder if the vulvodynia is an atypical expression of hsv since they are both nerve disorders

    • caroline36678
      caroline36678 ouch109

      Posted

      Really hard to say...

      I have the same thing!!! I am positive for hsv1 (not 2) down there. I am pretty sure i did not have it for a long time because i was soooo sick when it happened...

      Anyways, thank u for your answer, i know what is happening to me now.

      I hope you are gonna get better soon!

      Take care of yourself!

  • ouch109
    ouch109

    Posted

    Thanks for responding Caroline!!

    Good luck to all of us !

  • ouch109
    ouch109

    Posted

    I posted this same question on the vulvodynia forum so maybe some one over there will know
  • FelizCastus
    FelizCastus ouch109

    Posted

    I just Googled vulvodynia and herpes, and it appears other women have the same issue with both, with one derm website saying that vulvodynia can be brought on by herpes simplex or zoster. But I read elsewhere that frequent vaginal infections and antibiotic use could also be a cause.
    • ouch109
      ouch109 FelizCastus

      Posted

      Youre dedicated lol !!!

      Its confusing. Theres lots of stuff out there. Some say its not related, others swear it is.

      Ultimately i guess it doesnt matter, except im worried about my level of contagen. I am afraid i might be caught in some incessant prodromal state. That would mean im constantly shedding, that would suck!!

    • FelizCastus
      FelizCastus ouch109

      Posted

      Lol, too much free time and nothing better to do!

      Vulvodynia itself does not presumably cause HSV shedding, so the issue is how to distinguish between vulvodynia sensations and HSV prodromal symptoms.

      Kinda costly to do, but I have read that it's possible to have yourself swabbed for several days to look for shedding. Might just be a series of regular PCR vaginal swabs, I suspect.

    • lisa53847
      lisa53847 FelizCastus

      Posted

      Hi. Is anyone still on this thread. I have vulvodynia from hsv 2. It's been 5 months. I feel like my life is over. Amitryptline helps and I might go on lyrics. But my concern is being contagious all the time. My bf doesn't have h so this could ruin our relationship. Please is someone in my situation could reach out it would mean so much

  • ouch109
    ouch109

    Posted

    I wish they would come up with an in home swab, that would be a great addition to the take home ph tests and pregnancy tests
    • FelizCastus
      FelizCastus ouch109

      Posted

      I think that can possibly be arranged with your doctor. You'd have to enquire.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.