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Waiting for another Drs appointment

Posted , 10 users are following.

tt66441
tt66441

Another few days of feeling awful does anyone else wake up really thirsty, tongue feeling sore and rough? Blocked nose. Just feel stupid having to right down everything, to prove to my Doctor what im going through it makes me sad just want my old self back ive always been so active xx

0 likes, 29 replies

29 Replies

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  • tiswas24537
    tiswas24537 tt66441

    Posted

    me to hun i hate being like this i get so frustrated being couped up .

    and have to think about everything i do before i do it .

    i have a dry mouth and nose most of the time but not  a sore tongue 

    • tt66441
      tt66441 tiswas24537

      Posted

      hi its rubbish isn't it I have just started the last two years having the flu jab due to my work environment but the aches and pains have been going on for over four years, silly things like sleeping with a pillow between my knees because of my back a v pillow because of my neck and shoulder I could go on and on I now want a diagnosis so I can move on with my life hate it at the moment hope you feel better soon Tiswas xx
  • loxie
    loxie tt66441

    Posted

    yes, every morning.  I've changed my pillows in case it was an allergy, I keep the heating off in the bedroom, I even take a piriton every night before sleeping and still I wake up hurting to hell and back, mouth and throat are bone dry and yes, my tongue is raw.  It's driving me nuts being like this.  I'm so fed up of always complaining about how much I hurt, how bad I feel, how tired I am, etc etc., and I'm driving my friends and partner to distraction, they must really be getting very fed up with me always moaning.  I've had various guesswork from my doctor about how it might be related to a virus - for which I got prescribed a reducing course of steroids (prednisolone) which helped the pain whilst I was taking them but it all came back as soon as I stopped.  Didnt do a thing for the other symptoms, which I have to admit are very 'flu-like'.  Like you Terri - I've always been active and hardly ever given in to illness,   I don't want some made up diagnosis just to get me out of the surgery, I want to find a cause for all this and get it to stop.  I'm sure my GP sees lots of people who just want a reason not to work, I'm not one of them, I have to work to support myself and I want to do it without being in horrible pain all the time and without my brain fogging up.  I had a mammogram appointment today - I firstly misread the letter and got the time wrong, even put the wrong time in my work calendar (luckily although I turned up late they still saw me), then I had agony lifting my arm over the machine as asked, then when finished, I had the embarrassment of having to ask the nurse to help me get my bra done up.  For heavens sake I'm not even 60 and I'm feeling and acting like a 100 yr old.  This is all so wrong.
    • tt66441
      tt66441 loxie

      Posted

      i know what you mean Loxie I hope you start to feel better soon xx
  • Lucyred
    Lucyred tt66441

    Posted

    Don't feel bad I believe all of us have to keep records of what is going on. I do wake up super thirsty but not the other things. I am like you I wish I had my old life back. Take care of yourself!
    • tt66441
      tt66441 Lucyred

      Posted

      you to hope you feel better soon Lucy thank you for your reply xx

       

  • moyra94678
    moyra94678 tt66441

    Posted

    Has anyone discussed if any of us suffering from Fibromyalgia could be linked to flu injections?

    The last two I have had,gave me a bad reaction, and I am thinking of stopping it.

    I have looked up clinical trial on Flu injections and Fibro, and they did trials in 2011 in Israel, but I cannot find the results....makes me wonder why!

    What do you think....could this be a link?

    • loxie
      loxie moyra94678

      Posted

      Don't think mine is as I haven't had a flu injection for many years and its only the last six months I've suffered from the fibro issues. I'm still suspicious about the viral link though, particularly as taking the steroids short term did have significant affect on my pain levels.
    • tt66441
      tt66441 moyra94678

      Posted

      i have felt like this for about the last four years, been having the flu jab for the last two.but the tiredness has developed in the last 8 months but it's got really bad my sleep pattern is weird  I could sleep as soon as I get home from work sometimes I don't have food as I'm to tired to cook, then I go to bed about 8:30pm and I cannot wait to get under the sheets I go to sleep instantly i sleep all night wake up sometimes just before the alarm clock at 05:30am and I fell like I've had no sleep takes me about a hour to come round, my feet feel like they are made of wood they are so stiff in the morning  my back hurts and my right shoulder and neck are really painful. by the time I go out to work at 7:00am the pain has started to ease, by the time I have done my seven and a half hour shift I'm back to the same there's no end to it. I love going to work cannot imagine not working it would drive me mad sat at Home all day.
  • chrissie72261
    chrissie72261 tt66441

    Posted

    hi terri im the same but my doctor says it the tablets im on sore mouth dry throat and bugged up know
    • tiswas24537
      tiswas24537 chrissie72261

      Posted

      excatly why i take no meds ,except natraul stuff .its just not worth adding to the symptoms i am already suffering, 
    • tt66441
      tt66441 chrissie72261

      Posted

      Hi Chrissie what meds are you on? x hope you feel better soon
  • moyra94678
    moyra94678 tt66441

    Posted

    My reply is being moderated just now.

    But basically I was saying do any of you have flu injections.

    They dry your sinuses.

    I have started a new discussion on links to flu injections.

    • christine26761
      christine26761 moyra94678

      Posted

      I have flu injections every ear..I have never thought it could be this..as I take Amithriptiline at night and they can also do that..also have Sorgrens Syndrone...and that's the main source I reckon..also the meds...mm..make you very dry...but the flu like symptoms I think is the Fibro..it's soo hard to tell sometimes..isn't it...:-) xx. 

      Also I changed my pillows and sheets to Egyptian cotton and an allergy free pillow...pure wool is best..but my experience is they tend to flatten    too quickly.. I use an artificial saliva too..especially at night..a mint flavoured one..

    • tiswas24537
      tiswas24537 moyra94678

      Posted

      dont do flu injections ,why add problems to an already stressed immune system . this year the vaccine was incorrect for the virus anyway .
    • loxie
      loxie christine26761

      Posted

      I treated myself to a wool pillow too, I have to say its been great, but as you say it does tend to flatten a little or go a bit lumpy.  I dont suffer such an overheated or sweaty neck and head any more and, sorry to be yukky, I dont 'drool' due to an open mouth either any longer. I like you swapped to egyptian cotton bedlinen, no more polycotton.  Re the flu like symptoms, I'm guessing thats why my doctor took a stab at treating it as a virus because some of the symptoms are distinctly flu like but dont develop further into full blown flu.  I'm amazed just how many people are suffering from these pains and symptoms, it's almost epidemic, yet so far most GP's haven't a clue and just throw painkillers at us.  Anti inflamms dont work at all for me, paracetamol does a little but not completely. I really dont want to move onto opiates and addictive pain meds.
    • tt66441
      tt66441 christine26761

      Posted

      Hi Christine I'm lost at the moment I feel like I'm having to do the Drs job and justify myself to them. I need to get my head around it all and try to get some answers instead of getting fobbed off hope you feel better soon x
    • tiswas24537
      tiswas24537 tt66441

      Posted

      iv tried keeping  apain dairy but its hard to write down pain or fatigue when you have so much .

      and witth all the other things you cant do like other people you find ways round them and it becomes normal to you it drives me mad tryin gto explain how i feel every day 

    • christine26761
      christine26761 tt66441

      Posted

      I think that's what we all do a Terri ...do the dr's work at first..some of them have no knowledge at all about Fibro.no wonder it sometimes takes years for a diagnoses...then we get a tad depressed...gee..wonder why.!!! ...it's your health own it I say..I done lots of research about Fibro ...did print outs and took them to the Drs....he was fascinated to see them...ended up he did his own research..then sent me to a at Rhumo where I was finally sorted..have a great weekend..be blessed..:-) xx Find your own answers there is heaps of medical info out there...then you can visit your Dr full of knowledge and knowledge = power..xxx
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