Well here I go AGAIN,!

Posted , 7 users are following.

Went to see my back specialist today thinking he's going to say oh well with your FS there's no more I can do for your back ( which I have had a lot of problems with and one really big op) he made me feel really numb. I had convinced myself that I need to come to terms with how I am, 90% of the time in a wheelchair. BUT. He said to me that I might most probably need ANOTHER operation!! First bottom three vertebrae fused now he saying I might need the next three done as well!!! Totally thrown me for a loop!!! If I don't 100% in chair or if I didn't have op I most probably end up 100% in chair in the future!!!! My husband came with me and planed to come in the room, but my nine year old who has behavioural problems had to come with us started playing up so in I went on my own ! GREAT ! I feel I want to scream but can't because I have also lost my voice to a very sore throat!! When it rains it pours, well I suppose it's not pouring yet but drizzling really bad !! Lol I really need to find a light in this because at the moment all I can see is black. Need advice need a direction I NEED SOMETHING!!! Last op I didn't know I had FS didn't understand why it took so long to heal, this time I'm going to obsesse about it AHHHHHHHHHHH SCREAMING,!!! I wish there was a group I could go to and see faces but at least I have you guys on the end of a computer line. I'm sorry I'm rambling on I just......... Oh I don't know I'm scared! 😭😭😭😭

1 like, 9 replies

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9 Replies

  • Posted

    Maley Bear,

    No wonder you're scared, my heart goes out to you. You have a lot to contend with.I have no experience of this, i hope someone who has will respond. i can understand that it is probably very important to maintain as much mobility as you can. Sounds like you have great support, i wish you well.

    Take care, Anne

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  • Posted

    Really feeling for you Marley Bear, this is just rotten for you...and to have small children/child too is just soooo hard..I have no experience with this, like Anne, but I do hooe things get better for you really soo..also, if you feel like screaming...do it...you probably need to.. I really hooe there is someone out here in cyber land that can relate to your up issues and help you, remember we are always here or you..gentle hugs from over the seas...try stay stressless, it's rear in impossible I know but that is sooo bad for us with Fibro..be blessed. Hope you have a less  painful day today...at  least....:-) really thinking and praying for you Marley Bear...xxxx
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  • Posted

    Hi Maley Bear;  I'm not sure if I have this correct.....if you Don't have the op you will end up Permanently in your chair "in the future"....but you are already in your chair 90% of the time now...is that correct?   What exactly is the problem.....and is it your back being in too much pain to support you, that you are in need of your chair, or some other condition?  And what will happen to the next 3 Discs if you don't have them fused?  Does the op need to be done ASAP?   Do you have time to consider this/to get another opinion?  Do you have complete faith in your doctor?   You do sound as if there are a lot of questions to have answered....our backs are very special parts of our body....I feel if it were me, I'd be putting off having the op for as long as possible....or is the pain in your back "unbearable"???   and if this is a condition that affects your discs, are there going to be more needing  fusion later???...Do you ACTUALLY have the use of your legs, or have the nerves been entrapped?   Perhaps by answering each/some of these questions, to yourself, and discussing them further with husband and ?another doctor/specialist, it may make this decision a Little easier??  It is certainly not something that I would like to have to make a decision on....but feel that I would not have back surgery, UNLESS it was absolutely imperitive....but also cannot make that statement without knowing the reason for same...without knowing what is the exact problem?  Gosh, I've probably given you a bigger problem....but feeling for you, as I have not been in this position, and would not want to be in same......please let me know anything further that may help....Perhaps use this site like a Diary....write down ALL...1).what is the underlying cause?  2)  what WILL really happen if I don't have the surgery?  3)how long before more discs go?  4)  if I have to be in my chair 100% of the time, will it be much worse than now?  5) can I really stand the thought of more surgery and the recuperation?  any questions that are in your head/worrying you, write them down and we could help you and your husband work through them.......please let me know if this has made things worse?  as I would hate to have done so.......Bron
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    • Posted

      No you haven't made it worse, what you have said is exactly what I need to hear THANKYOU. I do use a wchair ALOT but in the house I can walk useing two crutches. But my left leg I drag. You've given me lots to think about 😌
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    • Posted

      Thankyou Maley Bear;  I would like to know your Full story.....it sounds so heart-wrenching, and would like to go with you on this journey....can you keep coming back, and let us know more?   Will be waiting to hear more, and what you decide..................Bron
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  • Posted

    Hi Maley Bear

    Ahhh poor you. I'm sorry I don't have the answers for you, but I am sure someone on this forum will be able to give you advice.  All I can give is support in saying don't give up and we are all here for you if you need to scream and shout.

    Gentle hugs to you and take care wink x

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  • Posted

    Poor bear wish there was something I could say to cheer you up, if Ijhada magic wand i would whizz away your fear and pain, can we not cry on each others screens, I'm aawaiting my upper neck to be operated on and I'mso scared, a ccontrol freak like to be able to do thingsmy way with ocd its ddriving me round the nemd now struggling with fibro, havingan op, iIthink iIwill have a nnervous break down. Sorry Iwwasn't any help xx
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  • Posted

    Hi Marley Bear

    Like so many others I don't have any expierience of what you are going through, but I have read everyone's replies, and I think Bronwyn is right when she says write it all down. This is something I have to do these days before I make any descissions - or if I am visiting the doctor etc. Like you I have a problem with my voice, when I am even the slightest bit stressed or worried it goes completely, that really doesn't help when you are trying to discuss anything, but if it is written down it helps.

    Hope this has helped just a little,and if you need to scream and shout, then we are here to listen, even if it is virtually!! 

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  • Posted

    THANKYOU all of you. Your kind words mean a lot to me, telling me I'm not alone 😌
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