Posted , 7 users are following.
Went to see my back specialist today thinking he's going to say oh well with your FS there's no more I can do for your back ( which I have had a lot of problems with and one really big op) he made me feel really numb. I had convinced myself that I need to come to terms with how I am, 90% of the time in a wheelchair. BUT. He said to me that I might most probably need ANOTHER operation!! First bottom three vertebrae fused now he saying I might need the next three done as well!!! Totally thrown me for a loop!!! If I don't 100% in chair or if I didn't have op I most probably end up 100% in chair in the future!!!! My husband came with me and planed to come in the room, but my nine year old who has behavioural problems had to come with us started playing up so in I went on my own ! GREAT ! I feel I want to scream but can't because I have also lost my voice to a very sore throat!! When it rains it pours, well I suppose it's not pouring yet but drizzling really bad !! Lol I really need to find a light in this because at the moment all I can see is black. Need advice need a direction I NEED SOMETHING!!! Last op I didn't know I had FS didn't understand why it took so long to heal, this time I'm going to obsesse about it AHHHHHHHHHHH SCREAMING,!!! I wish there was a group I could go to and see faces but at least I have you guys on the end of a computer line. I'm sorry I'm rambling on I just......... Oh I don't know I'm scared! ðŸ˜ðŸ˜ðŸ˜ðŸ˜
1 like, 9 replies
anne90395 Maley_Bear
Posted
No wonder you're scared, my heart goes out to you. You have a lot to contend with.I have no experience of this, i hope someone who has will respond. i can understand that it is probably very important to maintain as much mobility as you can. Sounds like you have great support, i wish you well.
Take care, Anne
christine26761 Maley_Bear
Posted
bronwyn97278 Maley_Bear
Posted
Maley_Bear bronwyn97278
Posted
bronwyn97278 Maley_Bear
Posted
Bee70 Maley_Bear
Posted
Ahhh poor you. I'm sorry I don't have the answers for you, but I am sure someone on this forum will be able to give you advice. Â All I can give is support in saying don't give up and we are all here for you if you need to scream and shout.
Gentle hugs to you and take care  x
tiff74 Maley_Bear
Posted
PiliPalaB4ch Maley_Bear
Posted
Like so many others I don't have any expierience of what you are going through, but I have read everyone's replies, and I think Bronwyn is right when she says write it all down. This is something I have to do these days before I make any descissions - or if I am visiting the doctor etc. Like you I have a problem with my voice, when I am even the slightest bit stressed or worried it goes completely, that really doesn't help when you are trying to discuss anything, but if it is written down it helps.
Hope this has helped just a little,and if you need to scream and shout, then we are here to listen, even if it is virtually!!Â
Maley_Bear
Posted
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