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I had been feeling really unwell following my dad's diagnosis of terminal cancer. I couldn't stop shaking, had palpitations, was losing weight, kept over heating, had swollen ankles and quite honesty felt awful. I found that I had no energy and my legs and arms ached. i assumed that i was having a very physical reaction to the anxiety linked to my dad. I went to the doctor who said she suspected hyperthyroidism and carried out bloodtests. In the meantime I then developed a noticeable lump in the left side of my neck, which moved when I swallowed - the out of hours GP said it was a thyrotoxic nodule. My bloodtests came back showing extremely high levels of thyroid hormone - usually 23 - mine was over 100. No wonder I was feeling so ill! My GP contacted the endocrinologist who prescribed Carbimazole, beta blockers and diuretics. This sees to have done the trick and my levels are decreasing week on week. Initially I was given two month wait for my 'urgent' appointment. My GP was great and pestered for a sooner appointment, which I attended on Friday. I have now been diagnosed with Grave's Disease and have been booked for a scan on my neck. I have also been prescribed selenium to help prevent changes to my eyes. Interestingly, I have been under the eye clinic for 18 months and they haven't done a blood test - they said I had dry eye syndrome - now I find out that it is part of Grave's. The endo was not impressed that this had been missed. I am relieved to have a diagnosis and to know why I felt so ill. I now have a medication regime and I have reviewed my diet and most symptoms have improved although I still have sleepless nights, am still losing weight, have constant upset stomach and a growing lump on my neck. The endo thinks that the extreme reaction I had in terms of stress regarding my dad's diagnosis triggered a sudden flare up in my thyroid although she thinks I have had this for a while and was ignoring the symptoms and just getting on with things, even though i was feeling under the weather. I have now read a lot about Grave's and am worried about the ongoing symptoms of pain and aching - I have been told that I have a lot of muscle wastage already, which may cause problems. This aspect probably concerns me most - has this affected anyone else out there. If so, what should I expect and how can I help myself in treating this?
Also, my consultant is considering removing my thyroid. What will the impact of this be?
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