Why is my TSH rising?? I'm on meds!!

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I'm a 21 year old female and live in the US. I was diagnosed with hashimotos when I was 6 years old and haven't had normal levels since. I switched to a new GP last year and was taking 62mcg of levothyroxine. When I had my levels checked my TSH was 11.82. He bumped up my meds to 88mcg or something similar and I was tested a few months later. My TSH was then a 8.6 and I thought I was heading in the right direction. He bumped up my meds to 100mcg. I just got my bloodwork done last week and my TSH came back at a new high of 16.55!! What the heck? This is not ok. I'm so frustrated....

Also my t4 was normal and he didn't check my t3...

I do have symptoms but I've had them for so long they kind of feel normal... I'm tired all the time, I'm always freezing, thinning hair, brain fog, and low energy in general. I'm a college athlete and need to be healthy to perform at my best! My coach doesn't understand it... I just look lazy and tired (not that I've

explained it to him lol). I'm in class for the first half of my day, then practice for the rest. Practice is to 3 hours a day six days a week of intense training. By the time I get home I literally just want to pass out but then I'm up all night doing homework. This whole thyroid thing is making this schedule near impossible. Sorry for the rant I'm just really frustrated.

Any ideas on why my thyroid won't work right? Any thoughts are greatly appreciated!

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  • Posted

    Hello Anne, there are thousands of thyroid posts here with similar problems. Many of us have struggled for years with meds, without, whatever. I encourage you to read through the posts here and see what resonates with you.

    For me, I have Hashimoto's and have found the prescription meds to be ineffective and to worsen the autoimmune disease that causes the Hashimoto's. After 2.5 years on Levo, I now have severe spinal arthritis and stone deterioration, fibriomialgya and went from a size 3 to a size 12. I feel like a went from looking like a model to a hag.

    The posts I've read here tell a story that leads me to conclude these meds are not the answer. Your story is one of many.

    Others have posted things to try. If you can't find something, please PM me and I'm happy to pass on whatever might be helpful.

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  • Posted

    Hi Anne,

    Oh yes, I have made the same wail...

    You are now in college...big change.

    You are a college athlete...another big change.

    Your body is completing the maturation process...another big change.

    And to frost the big change cake, you have a new gp. any chance you can see your previous gp? Might be worth a consultation, might put yout mind at ease, might be able to continue to manage your case from a distance...all you do is go for the blood work near school and have the results sent back...I have done this

    Goid for you, college and an athlete...many people would have given up...I admire you!

    kind regards

    judith

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    • Posted

      Newsflash! I thought the same thing when I was out of college. Maturity was yet another rationale for the weight that haunted me.

      It took me nearly a decade to get the thyroid disease into remission. Had it in remission for a decade. Loved that! Loved being able to wear anything! If it didn't fit, it's because it was poorly designed!

      Thyroid  Went out of control following a severe bacterial infection and severe stress. Could have been any one of several factors that triggered it.

      The levo made it worse.

      Feels like I'm finally getting hope back as I'm off all the meds and trying amino acid therapy, which seems to be working. Other things have helped along the way. But since thyroid disease is caused by immune dysfunction, anything unnatural pretty much makes it worse.

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    • Posted

      Thanks Judith,

      I've been in college for 3 years now and I commute from home. I had to switch GP's because my previous one was a pediatric doctor. rolleyes

      I just don't get how I had a lower TSH when I wasn't taking any meds and now have a higher TSH with high dosed meds. The other thing is levo above 100mcg make my heart race like crazy so I'm just bummed that I have to take the 125 mcg meds...

      Thank you for your response and for reading the rant lol. I know I'll figure it out and that it won't be too bad I was just very frustrated this morning when I received my results.

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    • Posted

      Thank you so much for your response, Catherine! I hope to get mine into remission, that would be awesome! What's the amino acid therapy you mentioned?

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    • Posted

      Hi Anne,

      lol ..generally in Hashimoto you have a thyroid that functions minimally because of the goiter inside of the thyroid.

      You are given levo to replace what your thyroid can no longer release You may be having times when the thyroid inflammation goes down which means your own thyroid responds more vigorously.

      When inflammation increases, the thyroid function decreases.

      Thyroid is down right aggravating! I just roll with it and try to laugh.

      So, welcome to adulthood!!!!

      judith

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