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hi everyone. I am seriously thinking about coming off pregabalin as its side effects on me are horrible. I get muscle jerks (quite violent sometimes where my arm or hand has come in contact with something hot eg. my iron and grill and I have lots of burn marks on me.) Has anyone else had this whilst on pregabalin and has anybody come off it without any problems. Has your pain increased again cos that's what I am afraid of. Love to know if it is the medication causing these and not another manifestation of the fibro. Take care x
0 likes, 10 replies
melanieb sorelin
Posted
sorelin melanieb
Posted
cherl450 sorelin
Posted
I hope this helps
Best wishes
Cherl
sorelin cherl450
Posted
like hell when I get up after sitting but I just make a joke out of it now and pretend to quack like a duck---hey I walk like one so why not.
Wishing you pain free days, take care Lin
cherl450 sorelin
Posted
i know that feeling well and the pain in my buttocks is like u awful im suprised the pain clinic has finished with you as they can try diffrent things swimming is a good thearpy and helps alot but i take max of pregablin and tramdol and parectomol and sometimes the gp comes out and gives me morphine when pain is real bad but hun ask if u can be refered back to pain clinic and im sure you dont walk like a ducki bet you are a beautiful person who just hurts badly on inside,
wishing you all best
take care
Cherl
sorelin cherl450
Posted
They were very kind. I will get back in touch with paqin clinic but I think I have to go through GP again. I have never been offered anything stronger than co-codomol and I could sure use stronger meds for first thing in the morning. Where do you live? I live in Scotland just outside Edinburgh. Maybe it depends on where you live. Postcode lottery and all that .
Thanks love,
Lin Xx
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cherl450 sorelin
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grahammolyneux sorelin
Posted
I am seeing a specialist panel to see if my symptoms qualify for the Pain Management Course at Liverpools Walton Centre so I will post on here and let you all know how that goes.
Best of luck to everyone and wishes for the festive season.
shazmill sorelin
Posted
if you want to come off them talk to your doctor so you be weaned of them.
take care
eileen64__UK sorelin
Posted
I dont have fibro but do have osteo arthritis, kypho scoliosis {C shap curve inb my back} spinal stenosis.......havent collected fibro along the way yet lOL
My pain clinic {Northumberland} suggested I go on gaberpentin or pregabalin
When I went for my first hip replacement they automatically give you it a couple of days before hand. When I went for my pre assessment the nurse picked it up and said you shouldnt take that?
I have epilepsy but its well controlled and has been for 33 years {but still take meds} and apparently this is another epilepsy med which would mean I was overedosing
There are a lot of meds that have a few functions depending on what doseage you take. Amitryptilin is a muslce relaxant at a low dose but its for depression at a higher dose
So Pregabilin is an EP med at a certain dose but seems to help fibro at another dose??
I would say go and see you doctor and tell him what you've told us and see what he says {your GP to start with....I think I've been discharged from the pain clinic as well}
Good luck......keep us updated
Love
Eileen UK
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