Posted , 6 users are following.
I have been offered surgery on my bowel because of severe diverticulitis
but because I also suffer with Interstitial Cystitis the consultant can't
say if it will cure my pain . I could have the operation and still have this
terrible bladder pain. They can't be sure where the pain is coming from.
If you were in this position what would you do?
Thanks in advance.
0 likes, 15 replies
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lindalaz linda282930
Posted
Guest linda282930
Posted
Hi Linda,I've been diagnosed with Diverticula Disease and i have frequently got very loose bowels especially in the morning .I'm also on medication for Overactive bladder and I'm sure one affects the other.The more bowel movements I have the more I need to pee.
susan95516 linda282930
Posted
madeline27614 linda282930
Posted
Personally. It would depend on my level of pain. If you are in pain ALL the time it may be something to consider. Having said that. I don't know much about cystitis. I know that I used to get repeated UTI's and mine seemed to be because of my bladder prolapse. Did you go to see a gynecologist to rule that out?
linda282930 madeline27614
Posted
My pain is below my navel, low down, in the centre, in
my bladder area. Interstitial cystitis is not bacterial. .
The pain is like having broken glass in side you.
The pain is so bad I have been hospitalised with it 16 times.
My dilemma is it's not certain if I'm suffering from DD or IC pain. So hard to know what to do when the consultant isn't sure
if surgery would help me.
madeline27614 linda282930
Posted
linda282930 madeline27614
Posted
Antibiotics don't help in the majority of cases.
Odd times that they have helped it's only been for about a day
and then the pain is back with a vengeance.
Even oramorph doesn't help the pain, just knocks me out
so I get a little sleep.
madeline27614 linda282930
Posted
Have you seen a urologist? If not I think it's time. Find a reputable one. And make sure you like him or her. If you don't go to another. Prayers.
linda282930 madeline27614
Posted
I see a top urologist that specialises in painful bladder syndrome. I have had bladder instills but they didn't help.
A cystoscopy confirmed I have painful bladder syndrome.
susan95516 linda282930
Posted
madeline27614 linda282930
Posted
Well since you have that confirmed. I'm guessing you saw a Gastrointestinal doctor. The pain you describe is different than the pain I have experienced. Mine is like someone punched me in my stomach.
lindalaz linda282930
Posted
linda282930 lindalaz
Posted
I have had quite a few CT scans , they confirmed diverticulitis
and the sigmoidoscopy I recently had saw that it's gotten worse.
sally03642 linda282930
Posted
So sorry to hear of your suffering. I don't know anything about cystitis. Are you in a position where you could seek further medical advice from a urologist?
linda282930 sally03642
Posted
I'm already seeing a urologist.