I am new to this group but have been diagnosed with MACS for over 12 years. I have done well on high dose steroids until June of this year. I went to the MAYO Clinic in in October. I spent 10 days in the hospital there, and after 7 weeks came home to start Xolair and wean off the steroids.
I was wondering if anyone here was taking or had taken Xolair, and what their experience was like.