Redyne
I am new to this group but have been diagnosed with MACS for over 12 years. I have done well on high dose steroids until June of this year. I went to the MAYO Clinic in in October. I spent 10 days in the hospital there, and after 7 weeks came home to start Xolair and wean off the steroids.
I was wondering if anyone here was taking or had taken Xolair, and what their experience was like.
Thanks,
Sara
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Check out some Facebook groups: Mastocytosis and Mast Cell Disorders-An Integrative Approach ... Mast Cell ("Activation"
Disorders Forum ... Mast Movement.
There are many people there with Xolair experience.