Alström Syndrome UK

49 Southfield Avenue
Paignton
South Devon
TQ3 1LH

Tel: 01803 524238
Web: www.alstrom.org.uk

Alström Syndrome UK has three key aims:
  • To help people with Alström syndrome - to provide support for them, their carers and the professionals who are working with them.
  • To raise awareness amongst both the public and medical professions of Alström syndrome.
  • To raise funds to promote research into Alström syndrome.
Multi-disciplinary clinics for children are now held quarterly at Birmingham Children's Hospital for under 16's. Adult clinics are held at Torbay Hospital. Referrals for the clinics can be taken by Alström Syndrome UK.

A medical handbook is now available and downloadable from their website.

Last updated on 21/07/2012

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