30 Guthrie Street
Tel (freephone helpline): 08000 282459 (for advice only)
Tel (general): 01382 204 446
Fax: 01382 206 771
Best time to telephone: 9.00am - 4.30pm
The Brittle Bone Society was founded in 1968 by Margaret Grant MBE who has osteogenesis imperfecta and subsequently became a registered charity. Its aims are to promote research into the causes and treatment of brittle bone diseases, and to provide practical support, advice and encouragement to patients and their relatives.
Through the Society affected families can get in touch with each other and share ideas on how to cope. The Society organises local meetings and an annual conference which enable families to meet and exchange ideas. A regular newsletter gives advice on living with brittle bones. The Society advises on grants and allowances, schooling and equipment and genetics. Some equipment is available through the NHS but many children need specialised powered wheelchairs not available through the NHS. The Society raises funds to meet these needs.
Last updated on 21/07/2012
Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.