Costello Syndrome Support Group

Web: www.costellokids.co.uk

The web site is the home of the International Costello Syndrome Support Group. The support group has 90 families across the world.

It is an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Their aim is to gain a better understanding of Costello Syndrome to identify the best practices in treatment for children.

Most importantly they provide a support network through which families can share their own experiences and support each other through a mutual understanding.

On the web site you will find photos, extracts from publications, as well as a wealth of other information that may be of help to parents.

Last updated on 21/07/2012

Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.