The web site is the home of the International Costello Syndrome Support Group. The support group has 90 families across the world.
It is an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Their aim is to gain a better understanding of Costello Syndrome to identify the best practices in treatment for children.
Most importantly they provide a support network through which families can share their own experiences and support each other through a mutual understanding.
On the web site you will find photos, extracts from publications, as well as a wealth of other information that may be of help to parents.
Last updated on 21/07/2012
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