Tel: 03300 224 466 (local rate number)
Heartline is a voluntary organisation set up to offer help and support to children with heart disorders and their families regardless of how slight or severe the condition may be. Having a baby or child with a heart disorder can be very stressful, particularly at the time of diagnosis, before surgery and postoperatively. It may be helpful to talk to another parent who has experienced a similar situation and understands how you feel. The Association aims to provide the following.
Information - on congenital heart defects in the form of fact sheets about different disorders, education, exercise, feeding problems. preparation for surgery, etc. There is also a book, Heart Children, which is a practical handbook for parents covering all aspects of having a heart child including heart conditions, living with a heart child, hospitalisation, benefits etc. The book is available from the office (please contact Heartline to check on price before ordering).
Contact - between families by the maintenance of website forum, social events and a regular newsletter.
Support - through a website forum, email and telephone - information sent to hospitals where children diagnosed.
Last updated on 21/07/2012
Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.