Hyperekplexia Contact Group

216 Westcott Crescent
W7 1NU

Tel: 020 8578 0456 (after 6pm, Monday - Friday)

Hyperekplexia is a rare hereditary neurological disorder. Individuals with this disorder have an excessive startle reaction to sudden noise, movement or touch. There are other associated symptoms. Hyperekplexia may also be known as: startle disease, stiff baby syndrome, exaggerated startle reaction, familial startle disease. The Hyperekplexia Contact Group is a small group of families with affected children. The Group has the following aims.
  • Provide a listening ear to other families.
  • Raise awareness of hyperekplexia.
  • Educate professionals.
  • Keep up to date with current information and research into hyperekplexia.
The group produces a leaflet describing its activities and the condition itself. It also has copies of some clinical information. Please send a stamped addressed envelope when requesting information.

Last updated on 21/07/2012

Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.