Tel: 01633 664163
Laurence-Moon-Bardet-Biedl (LMBB) syndrome is a rare, recessively inherited disorder which affects approximately 1 in 100,000 babies born. The LMBB Society is a group of parents, affected individuals and interested professionals with a wide range of experiences and knowledge to share. It supports people with LMBB syndrome, their families and carers and provides information for them, the medical profession and other professions. It produces newsletters and holds an annual family conference at which people with LMBB, family and friends meet with interested professionals to discuss matters relating to the syndrome. There are no membership fees and no charges are made for information - the work of the society relies entirely on donation. The aims of the society are as follows:
- Provide contact with other families facing similar problems.
- Pass on advice to assist with day-to-day care of children.
- Increase awareness of the syndrome among medical and educational professionals.
- Advise on possible benefit entitlement.
- Provide a friendly point of contact for all those affected.
- Provide information through their leaflets, newsletters, conference report and their web page.
- Specialist dedicated clinics at Birmingham and London hospitals in conjunction with NHS. Information on their webpage
Last updated on 21/07/2012
Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.