Duchenne Family Support Group

78 York Street
London
W1H 1DP

Tel: (Helpline) 0800 121 4518, (General) 0870 241 1857

Web: www.dfsg.org.uk

The Duchenne Family Support Group (DFSG) was founded in 1987 by a small group of parents who had children diagnosed with Duchenne muscular dystrophy (DMD). Since then the number of families has increased dramatically and they now have a membership of more than 550 families across the UK, plus some families living overseas.

The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of information and experiences, and social activities.

They have a national network of contact families, who are there for support and advice, and a national helpline which is run by volunteers who are themselves affected by DMD.

Last updated on 29/04/2013

Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.