Kabuki UK is the only UK charity that supports families affected by Kabuki syndrome and everyone involved with the running of the charity is a volunteer who has a child with Kabuki. The aims of Kabuki are:
- To raise awareness of Kabuki syndrome by distributing information to local hospitals and gaining a higher internet and press presence.
- To provide information, advice and resources about Kabuki syndrome and establish a network of regional co-ordinators, who will provide support and help for newly diagnosed families in that region.
- To fundraise, with both regional and national events, to support the charity's aims.
- To organise and publicise family events which will provide families affected with Kabuki a chance to meet other families and share experiences, as well as a chance to have an enjoyable break.
Last updated on 19/02/2013
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