Orphanet is a database of information on rare diseases and orphan drugs. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases.
Orphanet includes a professional encyclopaedia, which is expert-authored and peer-reviewed, a patient encyclopaedia and a directory of expert services. This directory includes information on relevant clinics, clinical laboratories, research activities and patient organisations.
Last updated on 07/08/2015
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