A registered charity founded in the UK in January 1984 by Elspeth Lax, the PXE Support Group - PiXiE works with PXE patients and their families to help, support and counsel them about the symptoms of Pseudo Xanthoma Elasticum. They work closely with the medical profession providing advice, in order to educate them. They also educate the public, raising awareness of this rare condition.
Last updated on 26/08/2014
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