The Butterfly Trust

Swanston Steading
109/3B Swanston Road
EH10 7DS

Tel: 0131 445 5590


The Butterfly Trust provides face to practical support and advocacy in the community to people living with cystic fibrosis and their families.

They provide face-to-face, confidential services that include:

  • Emotional support and counselling at times of acute stress or distress.
  • Practical help that includes assistance with official forms and help to negotiate sometimes complex processes and official systems.
  • Advocacy and representation in relation to housing, education, employment and at disability appeals tribunals.
  • Financial assistance for essential items that enable optimum home support or respite breaks.
  • Transport to hospital appointments.
  • Befriending and mentoring for young people with cystic fibrosis.
  • Massage therapy in hospital for adults with cystic fibrosis.

Last updated on 06/11/2013

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