The aim of Triumph for Tomas, a registered charity, is to provide factual information to families who have been given PMD as a diagnosis and to enable them to connect with other families to share stories, milestones, advice and to feel less isolated and scared. The objective of Triumph for Tomas is the promotion and protection of good health among people suffering from Pelizaeus-Merzbacher Disease (PMD) and gene-linked disorders known as the leukodystrophies, characterised by myelin sheath abnormalities in particular but not exclusively, by providing information, advice, practical support and grants of financial assistance to such people and their families and carers.
Last updated on 19/09/2016
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