Tel: 01494 459888
The Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with xeroderma pigmentosum.
The group aims to relieve the needs of persons with xeroderma pigmentosum and other related conditions, and their families.
The Group raises funds for research, gives grants for UV protective equipment and products, and assists families to attend the group's own night-time camp, called the Owl Patrol, as well as night camps in the USA, France and Germany.
Last updated on 21/04/2015
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