Posted , 6 users are following.
85% Clear! Tried many, many remedies, this is the first one that worked. It has some side effects but today was the first day in 3 years I wore a sleeveless shirt when I wasn't using Prednisone. 😂
1 like, 7 replies
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carol49226 lucy00519
Posted
I took ACCUTANE which i think is probably similar when i was young.. I am all for trying ACETRETIN .
Was it hard to get your doctor to prescribe it and was the medication covered by insurance? What were your side affects.? how long have you had GA?
lucy00519 carol49226
Posted
I had disseminated GA for 3.5 years.
The Drug is covered by my insurance, otherwise it is $33 a pill. I went to a well known Dermatologist in Coral Gables that used to be the head of U of Miami Dermatology. He suggested the medicine. I tried everything else. I still have some residual spots of the GA but 85% better. I am supposed to use topical steroids for the smaller areas.
nancy77574 lucy00519
Posted
sounds promising!! How long have had GA, what was used before. is this covered? expensive? 411 would be appreciated❤
debrawaters lucy00519
Posted
Hi Lucy,
I have just started taking isotretinoin, (day3), and I'm thrilled to hear that you have had some success with the drug.
Could you let me know what dosage you were on & how long it took to see any improvement?
I would be so grateful as I have been living with this for over 3 years now. I have over 100 lesions on my legs & it is now spreading to my arms & chest. I know the condition isn't life threatening but it really is effecting my mental health.
Any information you could give me would be greatly appreciated.
Kind regards,
Debra
patti32460 debrawaters
Posted
Hi Debra,
I have over 100 lesions now as well, and I dont want to leave my home. This is really effecting my mental health as well. Im here for you if you want to talk as it helps me too. I do not have any lesions on my face yet, do you? I pray they find a cure for this awful skin disorder.
How long have you had it? I was diagnosed in August of 2018.
debrawaters patti32460
Posted
HI Patti,
Thanks for your message, so sorry to hear that you have been suffering too.
I've had this dreadful skin disorder for over 3 years now.
At the moment I am taking 40mg of Isotretanoin daily. I took 20mg for 4 weeks & have been on the higher dose for about 5 weeks now. As yet there doesn't seem to be any improvement but I am hopeful. Side effect haven't been to bad, skin is a bit dry especially my lips. Having regular blood tests as the medication can effect liver & kidneys, so far so good.
Will keep you posted if i have any success.
Likewise if you have any luck with any treatment please let me know.
patti32460 debrawaters
Posted
I absolutely will let you all know if anything works ! i never knew how much wearing shorts or sleeveless shirts would be missed!!! I live in Florida!
It helps me mentally just talking to others with same condition, thank you!