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Abdominal pain and urinary problems (8 months now)

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michael05657
michael05657

Hi all,

In October I went to the GP's because I was concerned with my health, I was having white sort of mucus/grainy sediment almost in my urine and stinging when urinating, I also had itching, nausea, light headed, was flushing, was fluctuating temperatures and was sweating a bit and had pain from my abdomen (right hand side) around the kidneys, which was always a constant tugging pain but would sporadically become a intensified sharp stabbing pain, I also sometimes had a pain from my bladder when there was a buildup of sediment, i was also fluctuating my appetite and also my sleep pattern. After some urine tests and blood tests (all was positive apart from nitrites found in urine once) I was admitted to the hospital to stay for examinations and tests, I was there for 24 hours and had some ultrasounds of my kidneys and more urine and blood tests. Everything came back fine so I was discharged.

I have also been referred back to the hospital as an outpatient and have my next appointment next month since it has been getting worse over time progressively and has added more symptoms, the symptoms it has brought are: pain and acheyness in neck, lower back, shoulders, elbows sometimes. Weakness and feeling heavy. And sometimes more so recently I have been unable to move even slightly to sit up from lying down without pain running through my entire body and I'm too weak to pick myself up and sometimes have to hold myself against the wall in the shower.

The symptoms that were originally there have all gotten much worse and more often, apart from the stinging pain when urinating and the bladder pain have disappeared completely. I've had more ultrasounds of my entire abdomen, more blood tests (including amylase) and more urine tests, along with physical checks on testicles and abdomen. Everything seems fine, I've also been trialled on amitriptyline and mebeverine, along with some antibiotics for if it were a UTI and also in the case if it where chlamydia I was given medication for that, but nothing has worked at all.

Today I had more blood tests (specifically non specific inflammatory and antibody), but my GP said he had no clue at all as to why I'm getting the symptoms like I am now and that he hopes the hospital doctor can work it out. However it's very stressful as this has been going on for 8 months now and nothing has been figured out and I don't know how much longer it can take, if they can diagnose me with something. But is there anything you can suggest to help myself or give ideas as to what it might possibly be?

A previous record: 4-5 years ago I had a injury to my right knee where I damaged the cartilage and had physiotherapy for a year, my grandad on my mothers side has kidney disease and has had a transplant and needs to go back on dialysis again, my mum had biliary dyskinesia about 8 years ago, and I was born with pyloric stenosis and had an operation for it at 5 weeks old.

The pain and acheyness is generally located to my neck, upper back, shoulders and lower back, however it can spread through to my knees, ankles, wrists and elbows at any time. I have tried paracetamol and ipubrofen over the counter pain killer wise and they do not help, and my knuckles and neck sometimes get stiff and tingly but clicking/cracking them seem to ease it for a bit.

Many thanks for those who can give advice to help myself manage or can give possible ideas

Below is a link to everything I have put here with picture of sediment when it's settled with time frames

https://docs.google.com/document/d/1miTvIGtYv054kN8E2DO4aR0UWxIKK0b9QOFTM8P-F5g/edit

0 likes, 3 replies

3 Replies

  • eric31962
    eric31962 michael05657

    Posted

    Firstly I'm not a doctor. Has your G.P. run tests ? Protein in the urine often gives a foamy effect . This could indicate leaking kidneys. Unfortunately there are many other conditions and infections which may give the same effects . Hope you are being refered to a specialist ? You need to get these symtoms looked at.

    On the other hand I knew someone who had much worse symtoms than you show in the photo's and thirty years later and after two children she has had no ill effects at all. !!!

    Good luck with this, keep on at the G.P.s to refer you do a specialist who can put your mind at ease.

                                     Regards E

    • michael05657
      michael05657 eric31962

      Posted

      Hi Eric,

      If by tests you mean a variation of bloods, urine and also microbiology then yes, he's run all of these. And nothing came up apart from slightly elevated creatinine levels which then went back down a week later and nitrites found once.

      I'm glad to hear your friend is now better but I simply cannot wait much longer, I'm already in a bed state as it is, at the time of writing I'm literally unable to sit up or stand, meaning I'm having to have a lot of time off work and soon I fear I'll lose it.

      And no I've not been referred to a specialist because I'm 17 so therefor have to see a paediatric team at the hospital, it's very stressful and I believe I do not have an appointment at the hospital for another month or so.

  • eric31962
    eric31962 michael05657

    Posted

    Sometimes we just have to keep facing the GPs and spell out the situation . As the GPs  are the gate to the hospitals so to speak . 

    Please explain clearly how you feel about this in addition to the symptoms. Tell them clearly that you feel really ill. There is no reason you should have to deal with the anxieties of this illness without some kind of support.

    I hope you will find a solution soon.

                                                          Best wishes, Eric  

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