I can't tell you how encouraged I feel from your comments. This is really an opportunity to hone any positive skills (which aren't exactly the most predominant part of my character) but like you I will be determined to discover what I can do rather than dwell on what seems like doors closing. Do I get rid of the car? Do I stop work? Will I have to move? All questions i don't want to answer but hey, I'm not falling over - yet..... I'm not in pain - yet....... I haven't got tinnutus - yet..........no-one has mentioned an op - yet.....
You all seem to have travelled much further along this road than me and are proving that anything is possible. I was particularly heartened to hear that Diane has continued fell walking. I'm a keen rambler in the Yorkshire Dales/Lake District, much of which you need a car to access, so this is good news indeed. I'm 63 now and used to be quite fit but am steadily building up walking distance again, since an inner ear virus laid me low for 2 months. The ENT consultant said "you have been unlucky haven't you" but it sounds like you all have had it far worse.
I have a friend who has sarcoidosis - that's fibroids in the lungs isn't it? She's away for 3 months but if Lord Muttley has any questions, I can ask her on her return to share her experiences. I know she's been a semi-invalid for 15 years but manages her condition very well, with practiced routines and lots of rest. We were amazed when she started driving a car again recently. This is a godsend, as her walking ability is just a few yards so she relies on an electric buggy. It seems strange but with her physical ability diminished, her mental capacities have enlarged so much so, that that she's a really interesting person to be around. Her range of knowledge is huge , she claims, due to listening to the World Service on the radio. At one stage - 23 hours out of 24 - that was all she could do. Admittedly she has 2 good ears but I find I lean more to the radio these days - perhaps while one ear is still working I suppose.
I guess I'll find out what a BAHA is when I attend the Balance Clinic in York in July so you don't have to go over old ground for me. It sounds like a second op for you Pammy - I'll just keep listening to what you say until it all falls in to place. Also, if you don;t mind, I'll let you all know the outcome of the Multi - Disciplinary Team consultation I'm waiting for. More months I expect but you're right it's not cancer! Everything you are saying is helping to build more knowledge and that is strength right? Thank you so much - it does really help. 0
reply to Lily the Pink