Anyone had any experience of this? All help welcome!

I have Intermittent temperature change in both calves and feet leaving them freezing cold. And also occasional cramping.

I suffer constant stomach discomfort, only a handful of foods now tolerated. Meat. Celeriac. Swede. Courgette. Carrot. Now make up all three meals of the day.

I have weight loss. Insomnia. Scaling on my knuckles and knees. Elbow pain.

Depression and hair loss. Sudden body temperature changes and a very distinct pin prick type pink rash on my legs when I get out of the bath.

If new a food is added then leg pains increase, mobility decreases and other symptoms occur, urgent diarrhea, severe headaches, burnt mouth and tongue sensation with sore lips. Mouth ulcers. Severe stomach pain.

I can trace the start back to November 2014 where I experienced sudden onset diarrhea for 10-14days with ensuing weight loss.

Then again in March 2015, sudden onset diarrhea 10-14 days with weight loss and the start of the random leg pains, like a fleeting tearing sensation but with no consequence.

This continued on into 2016 with my digestion never fully recovering resulting in the start a more restricted diet as more and more foods seemed to cause a reaction. Then just walking downstairs I tore a 2.5” wound across my left gastrocnemius and Solaris muscle + fascia. Although the tear then healed and I was able to walk again, even with intense physio I was unable to rebuild the muscle and am left with atrophy

In 2017 my digestion continued to deteriorate with diarrhea 5-6 times pr day which led me to enlist the help of the first nutritionist. I was advised that a Comprehensive stool test pointed towards a klebsiella infection and course of supplements and antimicrobials were prescribed. From then on I was also unable to take any supplement due to an almost immediate adverse reaction.

Winter 2017 and a ripping sensation in both calves resulted in reduced mobility again, now being only able take very small steps instead of my usual long stride.

March 2018 after three months of intense physio legs deteriorate again. An MRI shows that the left gastrocnemius and Solaris have now separated. My legs are very cold and pale in colour.

This year sees the help of a Sports physio, Sports doctor, Vascular surgeon (normal pulses in both legs). Neurologist...normal reflex’s electrical and nerve muscle tests are also normal and a so called ‘Pain specialist’ who states is not familiar with my pain or pain pattern.

By Winter 2018 I’m managing to eat a wider variety of foods and my mobility eases to walk short distances slowly and at the start of 2019 I attend the hospital of neurology at Queens Square London for a back and full leg MRI and consultation to be told no abnormalities can be found even though my symptoms persist. So I employ another nutritionist and a variety of tests, Hair mineral analysis, SIBO and comprehensive stool test. All normal apart from high calcium markers in the hair (this does not show on a blood test). After a disastrous year of advice, more supplements and trying to add more foods my digestion gives in to three weeks of profuse watery diarrhea and pain.

Winter 2019 and although my mobility is better on a very restricted diet I am still in pain with insomnia so I take the advice of a private thyroid surgeon and employ the services of a Naturopath. After one month of vitamin suppositories my walking immediately suffers and I lose all mobility and am reduced to crawling only, leaving me in my current situation, housebound and unable to work, walk or drive.

The next test is a ‘MOAT’ test and I’m advised that I have a C Diff infection and prescribed antibiotics. Then supplements and a more variety of foods. This results in a very fast deterioration of my health including insomnia. Severe diarrhea and digestive pain, scaling on my knuckles, knees and feet. Hair loss. Headaches and Depression. At this time the skin starts peeling off the bottom of my feet and this lasts for 7-8months and I am left with a red pinprick type rash over my legs when I get out of the bath.

All blood tests come back ‘normal’, including the ANA, ENA, dsDNA, ANCA and myositis ENA as well as creatine kinase.

I am unable to take any kind of supplement or improve my health via a change of diet as this results in an almost immediate deterioration of my health.

Previously I have never suffered illness. I enjoyed a very variable whole food diet with no sugar or fast foods

Anyone else experienced similar symptoms? or kknow of the cause?

All help Welcome!

Thank you for reading my post

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