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Benign Essential Hand Tremor Syndrome

Posted , 3 users are following.

michael95486
michael95486

I suffer from Benign Essential Hand Tremor Syndrome.  Is there anyone who can offer advice on this often embarrassing problem, please?

Best wishes to all

Michael

0 likes, 8 replies

8 Replies

  • Tezes
    Tezes michael95486

    Posted

    Hi, I have dystonic tremor that affects all my limbs, head and jaw. It's similar to ET but the movements are not even so more jerky.

    I have propranolol and clonazepam which minimises the tremors. Have you seen a neurologist ? Are you on any meds ?

    • michael95486
      michael95486 Tezes

      Posted

      Hi Tezes

      Many thanks for your prompt reply.  I shall ask about clonazepam.  I tried propranolol, but no joy.  I have not seen a neurologist, but I suffer from resistant depression, which I have been told may have a bearing on the problem.  I shall let you know, if I get any further.

      Thanks again for your very kind attention.

      Michael

  • Tezes
    Tezes michael95486

    Posted

    Topimax is another drug they use for tremor, I'm sure there's plenty more.

    i do know that anxiety makes the tremor worse, 

    i think it's the combination of the propranolol and clonazepam that works for me

    good luck

  • kathleen58023
    kathleen58023 michael95486

    Posted

    Hi Michael,I was diagnosed with benign tremor which has affected my head and hands I have had it for 40 years.it used to only affect me during the day but 2years ago it started affecting my sleep so I went back to my neurologist   And have now been diagnosed with neck dystonia ,I have to get 2 injections into the back of my neck every 3 months for life.do you notice you get it when you are anxious ,uptight or stressed.kath x

     

    • Tezes
      Tezes kathleen58023

      Posted

      Hi Kath

      makes me wonder whether you've always had dystonia and had been wrongly diagnosed with ET.

      i say this because my first symptom was tremor, my GP said it was probebly ET but referred me 'just in case'. After many tests, brain scans etc I finally saw a Cons Neuro who specialises in movement disorders and she diagnosed me with Torticollis (neck dystonia) with dystonic tremor. I also go through period of it affecting my vocal chords (dysphonia).

      my condition are controlled with the meds as I have said above, I haven't had Botox - the cons I am under does run a Botox clinic for dystonia but told me medication is her first line of treatment. That was two years ago and so far so good, obv I still have neck pain and other noticeable signs in the position of my neck but as for the tremor but it's not very obvious to other ppl. 

      All the best x

    • michael95486
      michael95486 kathleen58023

      Posted

      Hi Kathleen

      Thank you very much for your very kind response.  My heart goes out to you suffering for so many years, from this problem.  I shall take on board, what you have said.  I am hoping to see my GP, on Monday and see what happens.  Again, thanks for all your advice.

      Best wishes

      Michael (I do suffer from resistant depression)

  • kathleen58023
    kathleen58023 michael95486

    Posted

    Many thanks Michael you are probably right.it can be embarrassing too.the thing I can't cope with is night time sometimes I am still awake at 4.20am then I am up for work and I am so tired.

    Kath x

     

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