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Bisphosphonates (bone builders!)) while having Fibromyalgia?

Posted , 3 users are following.

linda17563
linda17563

Hello,  I have Fibromyalgia and Polymyalgia....I have been advised, because of  being on steroids that I need an injection to Prevent Osteoporosis, I have Osteopenia....I like some others with Fibro, react to medication.  Has anyone else had these injections, if so how was it for you??  Thank  You.

0 likes, 8 replies

8 Replies

  • Bee70
    Bee70 linda17563

    Posted

    Hi Linda

    Sorry but I have not had these injections.

    Hopefully someone on this forum will be able to assist. 

    Good Luck wink x

  • kate1949
    kate1949 linda17563

    Posted

    i have 2 injections per year because i have osteoporosis, it is called denosumab 60mg which is given in my stomach area, each time a different side is is used i have no side effect.  i am not sure it this is what you mean. 

    I did have an intravenous drip, before these injections, which had the most horrendous side effects which lasted for about a month, which made me so very ill.

    i am 65 years old so i am not sure of the injection you mean.. I also suffer from fibromaygia and osteoarthritis, and am also using fentanyl patches one 25 umg and one 12 umg each 72 hours.  I suffer from extreme sweating and chills and do not know which medication is causing this.

     

    • linda17563
      linda17563 kate1949

      Posted

      Thank you Kate...I`m 63.....I don`t know what the name of the injection is...but will be finding out.  I have Osteopenia....and suck two adcal a day, but my Rheumatologist won`t leave it,  I don`t really want the injection......why did they give you intravenous drip, is there a choice which way to have it, if you don`t mind me asking?  Thank you.
    • kate1949
      kate1949 linda17563

      Posted

      I have just realised I posted message reply to you in the wrong place.   I have had no internet...sorry

      there was no choice with the the injections / intravenously.  The latter gave me dreadful side effects so now have the injection - it is fine, no side effects.  Mine is for osteoporosis.   The injection is build up bone density.   Don't worry.   Kate. Ps. I havd fibromyalgie osteo arthritis osteoporosis reynauds syndrome... 

    • linda17563
      linda17563 kate1949

      Posted

      Thank you for your reply....will try not to worry about it....if it`s tablets, we can stop taking them, but thought once the injection is in.....well you know what I mean.....Get fed with all, as I`m sure you do....rolleyes
  • wendy17323
    wendy17323 linda17563

    Posted

    I had polymyalgia for 3 years and was on steriods to stop you getting osteopuroris

    I have been given adcal tablets to keep bones ok (they are vitamin D and calcium)

    Mine has developed into fibromyalgia now which I am struggling with medication for pain and fatigue and sleep disturbance

    I have been to a pain clinic today and she has advised me to stay on adcal and keep my intake of vitamin D and E up as it helps this condition    I am 70 now

    she has also suggested I have melatonin 2 hours before going to bed

    I havent tried it yet will keep you posted

     

    • linda17563
      linda17563 wendy17323

      Posted

      Thanks for that....have you got over the Polymyalgia, and stopped taking steroids.?..I asked my Rheumatologist if just taking adcal was enough...NO ....she wouldn`t listen....I do think my Fibromyalgia has now got worse, especially the fatigue....and the Doctor`s think the steroids are doing it.  It a damn minefield trying to feel well, as we all know....Good luck with the melotonin......
    • wendy17323
      wendy17323

      Posted

      My polymalgia changed to fibromyalgia. I had a blood test and they said it was no longer PMR 

      Fibro doesnt respond to steroids so the Dr took me off the prednisalone slowly   I am surprised you are still on them  as it is common knowledge that they dont work with FMR

      I also have 1 tablet 70mg Alendronic acid once a week taken with water before you eat or drink anything

      it is important to take adcal and the above to keep your bones ok after being on steroids for  a long time

      I am now waiting for the results from the pain clinic about changing my nightime medication

      Will keep you posted!

       

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