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Body Numbness HELP!!!!

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shelbyrae
shelbyrae

I was an otherwise healthy 35 yo when in late December I started to experience numbness (anasthesia) feeling in my torso that spread to my neck and face with tingling pins/needles feelings. By January it was roving all over my body....sometimes my feet, sometimes legs, arms, hands....sometimes whole body....Very scary and sent me to the emergency room...CT was clean and was referred to neurologist....brain mri and eeg were normal (although he did say there was some slowing on left side-weird) and cervical spine turned up a bulging disc at C3 C4 that is focally deforming my spinal cord and causing spinal stenosis. The neurologist diagnosed me with cervical spinal stenosis and spondylosis w/ mylopethy and I was sent to neurosurgeon who recommended spinal fusion surgery. During this time my numbness was more constant especially in my legs, eyes were constantly dry, neck stiffness & pain, sensitivity to sound & light, bad headaches in back of head, feet and hands sensitive to cold water & air.... At the urging of family and friends we went & had 2nd & 3rd opinions from another neurologist & neurosurgeon who both believe I was misdiagnosed & the spinal chord compression would never cause generalized numbness througout body & other symptoms I was having. Having more tests & seeing a 3rd neuro thursday to see what he says...Just wondering if anyone has ever had body numbness in large parts of body & what the diagnosis was-could it be from bulging disc???....I would so appreciate any advice or experiences as this is wearing on me mentally and am very confused & scared.

0 likes, 3 replies

3 Replies

  • Tarhealing
    Tarhealing shelbyrae

    Posted

    Some of this sounds like mild Guiillain Barre symptoms. Was this ruled out? Many cases have varying symptoms and tests results. Did you have an infection, virus or vaccine before your symptoms began?
    • shelbyrae
      shelbyrae Tarhealing

      Posted

      Nobody has mentioned that & honestly I feel like not enough tests have bee done.... I actually did have an intestinal bug the week before my symptoms began but brushed it off as having too much fun on a Saturday night & having a bad hangover.... My husband & I never go out & we had a good time with friends & I was sick for a few days after.... When we looked back and realized how close this took place to when my symptoms started we wondered if there was a connection...we've wondered if somebody put something in my drink or if maybe my immune system was down & I picked up some weird virus.... None of my doctors have asked me if I was sick before this happened but I will definitely be mentioning all of this to them.... & they'll probably look @ me like I'm crazy as usual & dismiss it... I'm sorry I'm just so fed up with feeling like this & not knowing why for suresad
    • Tarhealing
      Tarhealing shelbyrae

      Posted

      Certain gastrointestinal illnesses can cause Guillain Barre Syndrome. Oftentimes it presents with ascending numbness/weakness moving throughout the body. I had a mild case back in 2014 that started following a Tetanus shot. I was affected from my legs & feet to my face & eyes. The first doctor I saw suggested that I keep a timeline each day with specific symptoms and their locations since they didn't know what was wrong. It was extremely helpful down the road. You might want to do this so it will be easier to look at the progression over time. I included when I got my vaccination so you may want to include when you got the intestinal bug just in case it's related. A timeline will be helpful whether it's this or not. 
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