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Bronchectasis and CPAP machine?

Posted , 2 users are following.

nanooskar
nanooskar

After being Dx with bronchiectasis, I was advised to have sleep study resulting in moderate sleep apnea. Spec. suggested triallying a CPAP to 'help my oxygen levels overnight'. I have been using one for a week now, went to sleep clinic for review and yes there is an improvement in my apneas, but I wonder what the value would be in spending a heap of money to have a CPAP? Any thoughts? oh, and I certainly cant use it when I am coughing a lot I found.

0 likes, 8 replies

8 Replies

  • dee38113
    dee38113 nanooskar

    Posted

    Hi nanooskar

    Same here i have both and just been told i have a1at hereitary emphysema but dont know stage of this disease yet bless you i am having this thought also do i buy or not xxxx

    • nanooskar
      nanooskar dee38113

      Posted

      Yes Dee, it is hard I am finding to get the medicos to actually commit to what will and will not have long term benefits!! I dont thankfully have emphysema...but that is just the luck of the draw I suppose. I will post if I get more information, I stilll have another 3 weeks rental time and pulmonary rehab next week, I have found that rehab guys and gals often will give straight answers! Blessings..xxxx
    • dee38113
      dee38113 nanooskar

      Posted

      I will also love to go to rehad pulmonary but still waiting for lots of answers xx thankyou for your answering me
    • nanooskar
      nanooskar dee38113

      Posted

      Its a big boat and lots of us in it waiting for those answers!!! xxx
    • dee38113
      dee38113 nanooskar

      Posted

      A big ocean with little fishes and big sharks noone wants to one wants to own the diagnoses x
    • nanooskar
      nanooskar dee38113

      Posted

      Dee..decision has been made by me not to buy the CPAP machine at this point..the expense is only one consideration. I have found that when I have flare ups I just cant bear the mask..the coughing + mask and I have woken feeling like someone was holding a pilllow over my face..I was choking..not really, but it sure felt like it..did it help my sleep apnea..yes, it did, did it help my oxygen stats...not that I was able to determine. I was measuring pre-sleep and any time I awoke, barely any difference in measurements.. so it is no from me to the CPAP.. hope this helps. Good luck to you, Dee
    • dee38113
      dee38113 nanooskar

      Posted

      Hi nanoostar

      Still waiting for mine sorry about your experience with the feeling of suffacation not nice . There are lots different mast and nasual to try dont give up hope xxx

    • nanooskar
      nanooskar dee38113

      Posted

      Not given up Hope Dee..but money is the monster at the moment..to pay for CPAP on pension is hard...trying to get into a funded program, xxxx
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