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Can it be gluten plz help

Posted , 4 users are following.

Gsc87
Gsc87

It all started 2 yrs ago with a terrible stomach ache and the passing of yellow stools

2 years later I still pass loose floating yellow stools with mucus or just diarrhea sometimes they look browner this a rare tho I have bouts of anxiety and depression upper stomach pain burning mid back pain

Insomnia joint pains alopecia Barbae pale skin weight gain/weight loss these symptoms come and go but the stool issue remains I feel ok for a few months then really ill

I have had bloods done Celtic included

Endoscopy

Colonoscopy

Ct scan

Ultrasound

Mri of intestines

All clear gastro says no sign of cancers or disease

Am at my wits end just want my life back

These symptoms didn't all come at once gradually over time I have noticed a struggle with fatty foods and things like pizza

1 like, 7 replies

7 Replies

  • Sue1247
    Sue1247 Gsc87

    Posted

    Why don't you just give up gluten and see if you feel any better. I found it quite easy and the only thing I miss is decent bread. Make sure you read labels carefully.
  • aveline
    aveline Gsc87

    Posted

    It's great that you don't have coeliac and even better that it's not cancer, GSC, but awful that your symptoms persist. sad

    You may want to try a food diary, although you're already aware of some triggers. It sounds a little more like gall bladder than CD and that won't change if you eliminate gluten. You can try it, though since you've ruled out Coeliac it can't hurt to cut out gluten. I think you'll still have the same issues, though - just my own (uneducated) guess. Your tests included gall bladder & liver checks? I think they can do tests to see your bile levels, are those normal?

    If there really isn't another cause, then I suppose it could be gluten sensitivity or another allergy/sensitivity behind this. I wish you luck!! Please keep us posted!

  • FA54321
    FA54321 Gsc87

    Posted

    Did you just have a blood test for coeliac disease? Or did they do a biopsy as well. Blood tests for coeliac disease are unreliable and biopsies need to be done (whilst eating continuing to eat gluten on a regular basis).

    As has been said already though, it can't hurt to try going gluten free to see if it helps and gluten intolerance can make you ill even if you don't have the auto-immune disease of Coeliac disease.

    • Gsc87
      Gsc87 FA54321

      Posted

      Hi I got blood test for celiac along with vitamins and minerals all were ok, when my endoscopy was done there was no biopsy taken only a biopsy when colonoscopy was done

      Only thing from all my test were a slightly raised alt on my liver this when back this normal

  • FA54321
    FA54321 Gsc87

    Posted

    So it's still possible it could be coeliacs then. Obviously you would need another endoscopy with biopsy to confirm it, or if you don't want to have another, you could just stop eating gluten to see if you improve. 

    I would add that when I had a blood test it came back negative but they booked me in for endoscopy and that proved to be positive and I have known this happen to quite other people, and it's well known that the blood test for coeliac disease is not very reliable. 

    • Gsc87
      Gsc87 FA54321

      Posted

      I have an appt with gastro on Tuesday and will raise my concerns I honestly don't know anymore I seem to go round so many different illnesses and scare myself stupid hope I get to the bottom of this

      Thanks for replies everyone much appreciated

  • FA54321
    FA54321 Gsc87

    Posted

    Good luck for Tuesday.  Just one thing though, if going for another endoscopy is an option to totally rule out coeliac disease, you must be eating gluten on a daily basis for at least 6 weeks beforehand for it to show up in your results. 

    Let eat us know how you get on next week.

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