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Can. Sjorgens be hereditary

Posted , 7 users are following.

glenys50797
glenys50797

Hello everyone.. Can sjorgens be hereditary.. 

0 likes, 16 replies

16 Replies

  • deidra40034
    deidra40034 glenys50797

    Posted

    Hi Glenys,

    I'm not a doctor, but I can tell you that my Mom has Lupus, I have Sjogren's, and RA, and now they think I too have Lupus, and they think my Mom has Sjogren's...this is not a surprise, as we were told eventually, if you have one, you can get the other. And 2 of my cousins have MS.  There is a lot of Auto Immune issues going on in my famly!!  So maybe not the actual disease itself, but the auto immune issue for sure!  Holy cow!  I've never written it down like this...what a mess the women in our family are in!!  eek

    • glenys50797
      glenys50797 deidra40034

      Posted

      Thankyou deidra for replying...I have a daughter 26.. And at the minute I am suffering with my hands.. I looked at a photo of my daughters hands and it was like looking at mine...she hasn't complained of any symptoms.. My mother didn't have sjorgons has far as I am aware... And nobody else in the family has it.. 

    • kristyk
      kristyk deidra40034

      Posted

      Hi Deidra, Isn't it the truth. My mom has been diagnosed with SS, RH, and Fibro even though hasn't been considered autoimmune disease. One sister Diagnosed with SS and fibro. My other sister diagnosed with RH and Fibro. My niece has been diagnosed with SS, fibro, Raynauds and suffers from symptoms that her Rheumy can't figure out as of yet. I have been diagnosed with SS,Raynauds, Lupus, Fibro. All of the women in our family have some sort of autoimmune illness the suffer from. We are also a mess.

  • kristyk
    kristyk glenys50797

    Posted

    Hi glenys50697, Yes it can. Like any of the autoimmune diseases there are. My Mother has Sjogrens Syndrome and I do also. My youngest sister also has Sjogrens.

    God bless,

    Kristyk

    • glenys50797
      glenys50797 kristyk

      Posted

      Thanks Kirsty's for replying... I don't recall any other of my family having it.. But I have a 26 year old daughter and am concerned about her.. As of yet she not had any symptoms.. But now I can tell her to go and get tested.. 

  • jennifer09136
    jennifer09136 glenys50797

    Posted

    If not directly hereditary, then definitely family linkings. My Mum had SS - but i was diagnosed at 27 and she not until she was 70. She had an entirely different set os symptoms to me. You would not have guessed we had the same syndrome.
    • glenys50797
      glenys50797 jennifer09136

      Posted

      Thanks Jennifer... Will have chat with my daughter and suggest she get tested for syndrome.. As far as I am aware she hasn't any symptoms.. I at the moment am suffering with my hands.. They keep swelling and joints very painful... I also suffer with dry eyes and mouth... 

    • jennifer09136
      jennifer09136 glenys50797

      Posted

      Glenys, I can understand your concern for your daughter, but am not sure she needs to be tested prior to any symptoms. So long as you both keep in the back of your minds the possibility of SS developing at some stage (and it may not ever, or until she is 70) I would allow her to live without fear and anxiety. I hope your symtoms improve soon.
    • deidra40034
      deidra40034 jennifer09136

      Posted

      Hi Jennifer,

      My Mom didn't have Lupus until she was 79, and she was so healthy all of her life!  So strange to get something like this at her age, and all of a sudden.  I have had "some sort" of auto immune issue since I was in my late teens.  They just never knew "what" it was.  I'm 61 now, and was finally diagnosed about, well I guess it's actually been almost 5 years ago now.  I think I said 3 years ago earlier, but my hubby corrected me.  LOL

  • janet20769
    janet20769 glenys50797

    Posted

    Hi Glenys,

    I'm sure it is, but in the form of many autoimune diseases. I was told by a Specialist that there is a gene which can make your immune system prone to 'misbehaving'. My family on both sides is plagued with autoimune disease, but as far as I know I'm the only one with Sjogrens. My paternal grandma had Rheumatoid Arthritis from her 20's, my dad has fibromyalgia and Reynauds. My mum had thyroid disease as did her Aunty, cousins and two of her cousins sons. My mum's cousin had Lupus from her 20's.

    I worry for my children now, but they are all in their 30's and mine didn't start until around 40. They are all full of allergies, but who isn't nowadays?

    As you can see, I do believe there is a gene involved but it can make the immune system cause a variety of diseases, must depend on other factors which disease develops, and maybe if there is no trigger some people with the gene don't suffer.

    • kristyk
      kristyk janet20769

      Posted

      Hi janet20769, You are so correct. Not everyone will develop that certain disease just because it is hereditary doesn't necessarily mean that person will always get it. I believe that there has just been a gene discovery in SS. But not a guarantee. I am going to double check that for sure. There has been so much more research studies recently. I will get back to you guys as soon as I locate that info. It's kind of late where I am so may not be till tomorrow.

      God bless you,

      Kristy k

  • heather72469
    heather72469 glenys50797

    Posted

    So how were people diagnosed with the blood test or rheumotologist - do they tell you if the ana or is it ena is positive blood test had one no response
    • jennifer09136
      jennifer09136 heather72469

      Posted

      For me it was good clinical diagnosis - unusual symptoms an a number of possible causes were ruled out until an astue doctor thought it might be SS and so blood tests were done. But like SS itself, each will present differently so the approach to diagnosis will be different.
    • deidra40034
      deidra40034 heather72469

      Posted

      It is normally found through a Reumatologist.

      For me it was my Rheumatologist.  He did a paper type test in my eyes, blood work, and I had the lip biopsy, but also certain issues with my joints over and above my RA, and skin issues.  He had suspected it prior to the tests though, as I also started having issues with my organs as well, and that is an on-going issue.  And I can’t take one of the main meds used to at least slow, or manage it, called  Plaquenil as in the first 3 months it had already caused damage to my eyes, and had to stop taking it immediately.  Once it causes damage, it can not be reversed.  Now my Rheumatologist is going to try Imuran for both my RA, and the rest of my auto immune issues, as the Methotrexate did not work on me at all.  I also take Prednisone, which helps with the discomfort in the bones, but does not slow, or stop the progression of any of it.  There are Auto Immune issues in my family, My Mom has Lupus, and now Sjogren's as well, and two of my cousins have MS.  And 2 of my Aunties had RA.

       

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