Posted , 8 users are following.
ok am not talking brain fog, i just not able after my last relaspe to gasp dates, paying people on the right date, getting appointments dates right, am i losing it or is it just my m.e.. oh if anyone has a plan for this please tell me.
3 likes, 14 replies
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phil50852 sicksals
Posted
If you use a phone calendar or ipad or laptop calendar - make sure you use it and set reminders for everything. Ultimately that might be the best way.
georgeGG sicksals
Posted
danny43 georgeGG
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Hi GeorgeGG, roughly how long did your mental function take before you felt up to speed again, I feel like I'm passed the worst part but feel like I'm stuck in the stage of not being really bad but not well either
georgeGG danny43
Posted
Hi Danny,
It took years. Do not let that dismay you. I was back at work and doing my managerial job effectively much earlier. It was confidence in doing mental arithmetic and is assessing time that took the long time. Somehow I could not feel I had the correct answer although I usually did get it right. About a year ago I bought two dozen eggs at £1.60 a dozen. That is £3.20 I said to myself and immediately I knew it was correct. The last tiresome bit of brain fog had at last gone.
With my best wishes and encouragement to keep going and to pace yourself. Getting overtired is likely to give you a day or two of setback.
GeorgiaS georgeGG
Posted
georgeGG GeorgiaS
Posted
Dear Georgia,
It took a long time. CFS had not been invented as a medical condition when I first got into trouble. In retrospecte it started with petrochemical intolerance. I became sensitive to a very wide range of chemical, scents, cleaners, smoked and cured food. I was also ridiculously sensitive to dogs. After ten years of no progress with steroids prescribed by a lung specialist and some glimmers of improvement from a homeopathic doctor we moved house away from a petrochemical complex and a notorious chemical destruction plant. Then following a dietician's advice my wife gave me only filtered water, boiled brown rice and pears. When I had showed some improvement she added to my diet one new item at a time. If I reacted badly that item was again removed from my diet. After a couple of years I had a reasonably wide diet but I had to avoid certain chemicals and cosmetics, all smoked food and all contact with dogs and dog owners.
After that stage progress was very slow but no longer so urgent. I was not in a hurry to explore the boundaries. Now, over ten years later, I can eat anything and have a dog. I react with dislike to many chemicals and scents but no worse than that. I seldom eat cured food. I have a useful amount of energy.
My wife must be given the credit for her careful control of my diet.
I hope this account might give you some ideas. Patience and pacing are essential.
GeorgiaS georgeGG
Posted
When I was a child I used to be sick after we'd been in garages to fill the car up. Then when I was a teen I noticed that electrical pylons and generators made me feel ill. Environmental factors definitely contribute to ME!
Are you Dod? I wasn't sure because I don't remember there being GG after your name.
georgeGG GeorgiaS
Posted
I thought you were GeorgiaSS. So I remembered incorrectly. Yes, I am Dod.
I would think you have a case for checking out what else upsets your imune system. Being sensitive to petrol, diesel or one or more additives to the fuel suggests checking cosmetics and householder cleaners etc.
Proximity to high tension power lines is well known for adverse health effects. I have no experience of that myself.
GeorgiaS georgeGG
Posted
I don't use cosmetics but I bought some without addatives in case I ever want to. I can't use anything in the house that contains man made chemicals. I use bicarb of soda and white wine vinegar for most things and I have a large and a small steam cleaner.
I get very ill from people's perfumes, shower gels, washing powders etc, which means I'm pretty socially excluded.
georgeGG GeorgiaS
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Yes it very socially excluding.
GeorgiaS georgeGG
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Ha ha! Sorry for laughing but how did it not occur to him!
kasandra15031 sicksals
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Libby42 sicksals
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Such a common but Mis- understood part of CFS is the chronic cognitive dysfunction. As well as the more common forgetting names, dates etc it can also manifest in day to day activities that you have been repeating all of your life. I know I have described on here before how I decided to try and Hoover one day...I got the Hoover out of the cupboard..and...spent the next 5 minutes trying to work out how to turn it on. 5 minutes later and in a crying heap on the floor, I had to admit defeat. I have had many incidents similar to this over the 30 years I have had this debilitating condition. They mostly occurred when I was in the midst of a very bad phase of CFS and when I was exhausted.
This is why pacing is Sooo important, a bit like " brain rest!".
GeorgiaS sicksals
Posted
You know those things professionals wear around their necks with identity cards, forget what they're called. I got one from ebay and some card holders and I always have it around my neck so I can jot things down when I think about them. It's really helpful! And you can get amazing patterned ones that look cool.